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"Waiting times and poor communication"

About: General practices in Lanarkshire University Hospital Hairmyres / Trauma & Orthopaedics (Wards 1 & 5)

(as a service user),

I initially contacted my GP around 2yrs ago with joint pain and fatigue and my scalp psoriasis was out of control.   I was sent for an x-ray of my hands which showed a subluxed joint and I was referred to orthopaedics, I waited a few months and had a video call in which I was told it was arthritis. 

Fast forward a few months and I re-visited my GP as my knees were affected now too and my neck.  I was given a thorough examination and told my joints were really stiff for someone my age and I was being referred urgently to rheumatology.  I waited 6 months (GP said around 6 weeks for urgent) and called to see of it would be much longer and I was told at this point waiting list was around 22 weeks.  After another month I called back to be told it had increased to 40 weeks.  I stated I was really struggling and exhausted/in a lot of pain but was told my referral had been downgraded to non urgent when it was received.   I contacted my GP again who said she would write back to rheumatologist to say my symptoms were worsening and I also contacted occupational health and physiotherapy through work.

I finally received an appointment 11 months after my initial referral,  I was so relieved to finally be seen.  The day of my appointment I was in and out in 10 minutes and felt as though I had completely wasted the doctors time. They took a brief history, barely examined me (asked if I could bend to the floor and bent my knee back and forward a couple of times) and reluctantly agreed to x-rays of my knees and an ultrasound of my hands. I asked of migraines could be related to whatever was going on and also if symptoms could be worsened my hormone changes throughout the month and was told to see my GP about that.  I left feeling like it was all in my head and that I shouldn't have had an appointment. 

A few weeks later I received a letter saying my x-rays were OK and result of scan would follow.  A week after this an appointment arrived with information about psoriatic arthritis and Methotrexate.   I called secretary and said I was confused as I had not had scan results or a diagnosis?? They told me they couldn't discuss diagnosis but  later called back to say consultant letter in my notes confirmed I have psoriatic arthritis and the appointment is to start Methotrexate. 

I am really upset that I found out my diagnosis this way.   I should have had a face to face or a phone call at least to discuss results and treatment options and given the chance to ask questions.

I am extremely disappointed in the lengthy wait I had to actually see someone and wonder how much long term damage has been done to my joints in this time.

I am also really hurt about the way I was made to feel at my appointment and how little time the doctor made available to see me.

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Responses

Response from Karen Jamieson, Patient Safety Co-Ordinator, Quality Improvement Team, NHS Lanarkshire nearly 2 years ago
Karen Jamieson
Patient Safety Co-Ordinator, Quality Improvement Team,
NHS Lanarkshire
Submitted on 22/08/2022 at 17:52
Published on Care Opinion at 17:52


Dear Troy81

Thank you for sharing your story on Care Opinion.

I am sorry to hear that you have had a negative experience.

Please be advised that GP’s are independent contractors and are responsible for investigating and responding to any concerns a person may have about their service, they are not registered to respond directly to feedback through Care Opinion.

Could I please invite you to contact the Practice Manager if you would like a direct response about the service you experienced, or contact PatientAffairs.PrimaryCare@lanarkshire.scot.nhs.uk.

Thank you

Karen

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Response from Lise Axford, Chief of Nursing, University Hospital Hairmyres, NHS Lanarkshire nearly 2 years ago
Lise Axford
Chief of Nursing, University Hospital Hairmyres,
NHS Lanarkshire
Submitted on 22/08/2022 at 20:18
Published on Care Opinion at 20:18


picture of Lise Axford

Dear Troy81

I am sorry to read that you have had such a difficult time and that you felt rushed and not listened to during your rheumatology appointment. I see that you waited a significant time for a review and that you were informed of a diagnosis in an unstructured manner. I can fully understand how distressing this must have been for you and would like to look into this further.

I would like to ask you to call patient affairs on 01355 585325 to give your details so that we can fully review.

I would also like to offer my apologies to you as it has clearly been a difficult and distressing time. I look forward to hearing from you.

kind Regrads

Lisr

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Update posted by Troy81 (a service user)

Thanks for your responses, my issues were never with my GP, I was seen several times by them and they really listened, empathised and tried to help however they could.

I will call patient affairs when I finish work tomorrow. Thanks again for your quick response.

Kind regards

Response from Lise Axford, Chief of Nursing, University Hospital Hairmyres, NHS Lanarkshire nearly 2 years ago
Lise Axford
Chief of Nursing, University Hospital Hairmyres,
NHS Lanarkshire
Submitted on 23/08/2022 at 08:48
Published on Care Opinion at 08:48


picture of Lise Axford

Thank you for clarifying.

Look forward to hearing from you.

Lise

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