Text size

Theme

Language

"Patients are entitled to full information"

About: Queen Elizabeth University Hospital Glasgow / Accident & Emergency Queen Elizabeth University Hospital Glasgow / Neurosurgery (Ward 64 – 66) Queen Elizabeth University Hospital Glasgow / Xrays and Scans

(as a relative),

A family member went to A+E 2 years ago due to a bad headache. An MRA with dye was done later; they said it showed a lesion but probably nothing but to double check, they did a CT angiogram . This next scan showed a small aneurysm. I'm not sure what happened next but think the results went to a MDT meeting. After this we met with the neuro dr who said it might not be an aneurysm but a lesion the relative was born with. The dr offered a catheter angiogram to double check. The relative decided to wait and see, and did not get this done because if the dr didn't think it's an aneurysm, why get a procedure done? The dr also said to continue driving.

A few weeks ago, my relative went to A+E after a head injury. They said there was no bleed and that they didn't think the aneurysm had ruptured. But we all thought it wasn't an aneurysm! They discussed a lumbar puncture but at the end it was decided that it wasn't required, however the dr also said things like that there could be potentially a catastrophic bleed. At the time it didn't bother my relative due to wooziness but when the headache got worse and had dizziness, difficulty with language and other similar symptoms, the relative went back into the hospital.

So the dr from a few days prior had talked about a catastrophic brain bleed; the next dr made my relative feel like a neurotic hypochondriac saying it's a teeny teeny little thing, it felt more or less asking, why are you here?

You'd think when it came to something like this the patient would be entitled to full information so that they can make the correct decision when it comes to either deciding to go ahead with further investigations or not. This affects not just the patient but also us the family. Something we all thought was done and dusted now need to be addressed but the relative has lost faith with the system. They shouldn't hide important information from patients.

Do you have a similar story to tell? Tell your story & make a difference ››

Responses

Response from Eilidh Gallagher, Clinical Services Manager, Institute of Neurological Sciences, NHSGGC 3 years ago
Eilidh Gallagher
Clinical Services Manager, Institute of Neurological Sciences,
NHSGGC
Submitted on 06/05/2022 at 15:35
Published on Care Opinion at 15:35


Hello PatientUk,

I'm sorry to hear that your relative hasn't had a positive experience over the last couple of years. I do hope that they are recovering from the most recent injury.

If you'd be happy to contact me either on 0141 201 2548 or via e-mail Eilidh.Gallagher@ggc.scot.nhs.uk then I'd be keen to look into this further for you and your relative. For confidentiality reasons I would require permission from your relative to discuss their care with you directly.

Thank you for taking time to share this feedback, all feedback gives us the opportunity to learn and improve.

Kind Regards

Eilidh Gallagher

Interim Clinical Service Manager, Neurology Medical Specialities

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful

Update posted by PatientUK (a relative)

Thank you for your reply Eilidh Gallagher. I'll ask the relative to contact you but I think the relative is in 2 minds.

They're thinking of going private but that's up to them. I'm just annoyed at the whole thing.

Opinions
Next Response j
Previous Response k