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"My mother's experience - utterly let down by all sides"

About: Blackpool Victoria Hospital / Clinical oncology Blackpool Victoria Hospital / Urology The Thornton Practice Trinity Hospice

(as a relative),

My mother, 69, went into her GP practice for back pain in November last year. She was referred by the nurse at the GPs surgery (she had not had her annual review for 3 years) for an ultrasound for her kidney as her bilirubin level was high. The day after the ultrasound the GP called her in and informed her of extensive shadowing and she was urgently referred to the Blackpool Victoria Hospital Urology team.

2 weeks later, a CT scan, 3 weeks later an appointment (extensive shadowing confirmed, cancer was inferred but not confirmed). 2 weeks later a stent. 3 weeks later she developed sepsis, caused by the stent. I think the NHS target is that from the first step of being referred by the GP cancer should have been diagnosed and treatment started within 62 days. Instead at day 67 she was admitted for sepsis, no cancer diagnosis. 

After 3 weeks in hospital, numerous different doctors, appalling treatment by consultants - an unforgivable instance (there were many) where a urologist, not an oncologist, told my mother, on her own that she had 3 months to live. My mother asked if my father could be on the phone during this beside consultation as he wasn't allowed into the acute medical unit due to covid restrictions. She was not allowed to call my father as the consultant informed her that this would be "Inappropriate" and was then given a terminal prognosis on her own. But still no confirmed cancer diagnosis. This disregard for people's feeling and care and essential lack of humanity is unforgivable. 

Another week goes by and finally a lung cancer diagnosis which has spread everywhere apart from her stomach and brain. 

After this, my mother was sent to the Trinity Hospice, where each time she was told that this was not a long term facility (this made my mother feel like she was hogging a bed, utterly disgusting in itself). She stayed at Trinity Hospice (a charity) for 3 weeks, her condition stabilised down to the support of great nurses, not doctors. However she was constantly hounded/reminded, that she could not stay indefinitely. She came home last week.

To this day my mother nor the family have spoken to an oncologist. We have been informed that treatment will only be offered if her condition improves. But now she is at home we don't know who is overseeing mum's care. We have now been told it's the GP. The GP surgery and pharmacy can't get mum's prescriptions correct. It is our understanding that Mum has to go to the GP to inform them of her condition.

So essentially that Mum has been sent home to die but to contact the GP when new symptoms appear. The hospital has gone silent. Trinity Hospice has gone silent. We have been left alone. 

The hospital's treatment of my mother, not only in term of her medical care, but in bedside manner and mental care has been awful. 

The NHS has let utterly us down with its incompetence and total lack of respect for its patients. 

This has damaged my family irrevocably.

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Responses

Response from Eleanor Walsh, Head of Patient Experience, Blackpool Teaching Hospitals NHS Foundation Trust 2 years ago
Eleanor Walsh
Head of Patient Experience,
Blackpool Teaching Hospitals NHS Foundation Trust
Submitted on 17/03/2022 at 17:42
Published on Care Opinion at 17:42


picture of Eleanor Walsh

Thank you for leaving this feedback on here about your mothers care at our hospital and Trinity Hospice. I am truly sorry to read about your mothers experience and how she has been made to feel so isolated and unsupported after such a serious diagnosis. This is not the standard of care we would expect and I wholeheartedly apologise for the challenges she has experienced in trying to gain a better understanding of her treatment plan and her condition. Please can you call me on 01253 95 5520 or e-mail myself at eleanor.walsh@nhs.net with your mothers details and I will look into this immediately with our cancer services.

Yours sincerely

Eleanor

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Response from Sean Talbot, Operations Manager, The Thornton Practice 2 years ago
Sean Talbot
Operations Manager,
The Thornton Practice
Submitted on 24/03/2022 at 12:31
Published on Care Opinion at 13:24


Thank you for providing feedback about the care your Mother received at our GP Practice. We are really very sorry to hear that you feel let down by standards of care and services overall. If you would like to discuss any aspects of care relating to our practice, please do contact me at the surgery on 01253 956282.

Yours sincerely

Sean

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