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"Being diagnosed with an acute leukaemia"

About: Beatson West of Scotland Cancer Centre General practices in Lanarkshire Glasgow Royal Infirmary / Clinical haematology

(as a service user),

I attended my GP to have bloods taken (a year ago) after having an unusually heavy period and some bruising. My GP had squeezed me into the next available clinic. By 4pm the same afternoon, a Dr from the practice had phoned me to say I had very unusual results and had to be admitted to hospital asap. I was admitted to GRI the same evening where I was met by the consultant haematologist (Dr Bagot) who told me with relative confidence she was sure I had acute promyelocytic leukaemia, but I would need a bone marrow aspirate to confirm.

She was so sure that we were going to begin part of the treatment right away. She was so kind, her manner and confidence in the diagnosis and treatment really made the difference to my feelings on being diagnosed. It’s never going to be easy to hear that you have cancer, but she made it so I didn’t feel in immediate danger, and that the doctors and nurses would take excellent care of me. I have never doubted them that I would be okay and come out relatively unscathed at the other end!

This initial contact and diagnosis I feel has really shaped how I have dealt with the experience and treatment over the past year. The overall experience of being attended to so quickly by my GP, to the lab staff picking up on my sample to the consultants confirming diagnosis took under 48 hours. 

In the end I spent 6 weeks at the Beatson hospital under yet more excellent doctors and nurses. As this was during a Covid lockdown, I had no visitors for this time period, so really appreciated any contact time with the nursing staff, who did try their best to spend even just a few extra minutes chatting as they were aware that a lot of patients were finding the isolation difficult.  I finished treatment in November, 3 days before I turned 30.  

I’ve still got some years of monitoring ahead of me, but I’m so thankful to our NHS and all the services that have allowed me to be here to tell this story! 


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Responses

Response from Nicole McInally, Patient Experience and Public Involvement Project Manager, PEPI, NHS Greater Glasgow and Clyde 2 years ago
Nicole McInally
Patient Experience and Public Involvement Project Manager, PEPI,
NHS Greater Glasgow and Clyde
Submitted on 17/03/2022 at 14:09
Published on Care Opinion at 14:09


picture of Nicole McInally

Dear Vlang91

Thank you so much for taking the time to share your story, we really do appreciate it.

I can’t begin to imagine what it would be like to receive a cancer diagnosis, but I’m pleased that Dr Bagot was able to reassure you and that her kindness, manner and confidence, made such a difference to you and how you have dealt with your diagnosis. I am glad that all the services involved in your care (including your GP and the lab staff) worked well and that you didn't have to wait too long for your diagnosis and your treatment to commence.

We know how difficult the restricted visiting can be on our patients and their families and I’m glad that the staff tried to spend extra time chatting with patients to help them feel less isolated.

Thanks again and I wish you well.

Nicole

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Response from Jean MacDonald, Quality Improvement Co-ordinator, NHS Lanarkshire 2 years ago
Jean MacDonald
Quality Improvement Co-ordinator,
NHS Lanarkshire
Submitted on 23/03/2022 at 11:46
Published on Care Opinion at 11:46


picture of Jean MacDonald

Good morning Vlanq91

Thank you for sharing your experience on Care Opinion regarding your treatment and care.

GP's are independent contractors and have no access to Care Opinion therefore; would advise you contact the Practice Manager to express your sincere appreciation for the treatment you received from your GP.

I wish you all the very best on your journey for the future.

Best wishes

Jean

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