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"No further forward"

About: Forth Valley Royal Hospital / Children's Ward Royal Hospital for Children (Glasgow) / Ear, Nose & Throat (ward 3b)

(as a service user),

My 2 year old son was referred to paediatric ENT at Forth Valley in February of last year over concerns about sleep apnoea. By July we hadn't heard anything and I was becoming increasingly concerned about his hearing as he was constantly congested and his volume of speech was increasing. His speech sounds were very unclear and being a medical professional myself I was aware that the errors he was making were not typically developing errors. 

My GP wrote a letter to expedite the referral and we were seen at Forth Valley ENT the following month. He confirmed what we expected that my son had large tonsils and adenoids and likely glue ear. He said an Audiology assessment and overnight sleep study were required. We did the sleep study that night and returned it the following day. We went back to ENT a month later to find that the Audiology referral hadn't been made. The sleep study confirmed as expected that my son had sleep apnoea and required surgery to resolve this. Because he was under 3 he was referred to Glasgow Children's Hospital for this surgery.

When I called Glasgow ENT a few weeks later they still hadn't received his referral and it was only sent because I chased it up with Forth Valley. We were advised that it would likely be the end of February before we saw the consultant in Glasgow. I was very concerned as I feel my son's clinical symptoms have worsened as he's getting older. He really struggles for breath at night with pauses of 12 seconds before he startles and gets a breath. It's very distressing to listen to. He's always tired as his sleep quality is so poor. He is so prone to catching bugs and always has a cough or cold and because he is so congested he coughs in the night and vomits in his cot.

I recently spoke to my GP again who wrote a letter to the Glasgow Children's hospital and we were then offered an appointment at Glasgow Children's Hospital. We left the appointment utterly deflated to find out that our son was only being added to their surgery waiting list in Glasgow despite a referral letter in September from a consultant saying he needed the surgery. We were also advised that there are 1000 children ahead of him needing a similar procedure and surgeries weren't even being done at the moment. We are almost a year down the line and feel like we're no further forward.

Working in the NHS myself, I understand the awful impact the pandemic has had on our children's services but I just don't understand why surgeries are not being done. 

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Responses

Response from Coral McGowan, Patient Services Manager, Women & Children's Services, NHS Greater Glasgow and Clyde 3 years ago
Coral McGowan
Patient Services Manager, Women & Children's Services,
NHS Greater Glasgow and Clyde
Submitted on 19/01/2022 at 17:10
Published on Care Opinion at 17:10


picture of Coral McGowan

Dear Tired and Sore,

Thank you so much for taking the time to contact us via. Care Opinion. It is clear from all you have written how worried and concerned you are about your young son and his ENT issues.

I am sorry you experienced a delay in your referral to our ENT services and am pleased to note that when we did receive it we were able to appoint for an Outpatient Review.

It may be helpful to explain, that we appoint to Surgical List once an operating surgeon has had the opportunity to review the patient, as their opinion may differ from the referring doctor.

At this time, and in line with the government guidelines, all our patients on our waiting lists have been assessed by their clinical need followed by the length of time they have waited and thereafter scheduled accordingly. I would wish to sincerely apologise if you were given the impression that we are not undertaking any surgeries - we are - however, at this stage we are prioritising those children with exceptional clinical need and those who have waited a very long time.

For children and their families such as your own, we do understand that this will be very frustrating and concerning and would seek to assure you that our clinical and scheduling teams are working tirelessly to do all they can to increase our capacity so we can see more patients sooner. We will keep you updated with our progress. I would also invite you to contact me directly (coral.mcgowan@ggc.scot.nhs.uk) and we can add your son to our cancellations list - which means if a slot does become available any sooner, we will contact you immediately. In the meantime, we would also advise that if your sons clinical condition deteriorates please do get in touch with your GP immediately as he may require reassessed.

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Response from Karen Macfarlane, Department Manager/Senior Nurse, Women,Children & Sexual Health, NHS Forth Valley 3 years ago
Karen Macfarlane
Department Manager/Senior Nurse, Women,Children & Sexual Health,
NHS Forth Valley
Submitted on 20/01/2022 at 16:19
Published on Care Opinion at 16:25


Dear Tired and Sore,

Thank you for contacting us via Care Opinion. I am sorry you have had this experience within our service for your son.

I am happy to discuss your concerns with you and ask you to contact me directly - karen.macfarlane@nhs.scot

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