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Care Opinion

Inappropriate respite provision

Posted By Marrt88

"Inappropriate respite provision"

About: Social Work / Social Work - Newtownabbey Central

(as a parent/guardian),

Once we went into adult services, the only respite offered to my child, who is mentally alert and completely verbal, was use of a nursing home.

They are nearly 30 yrs old and have multi complex needs and requires 24 hr care.

They uses a powered wheelchair,  controlled by with two fingers, and a Bi pap ventilator to breathe and needs a cough assist machine to cough.

We do not feel that that a nursing home is a suitable form of respite

We have suggested that four times a year 24 hr care via care provider to be brought to our home

We have not had respite in nearly 10 yrs.

We think there is now an urgency about this.  As his carer, I am unwell and need a break.

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Responses

Response from Eleanor McWilliams, Patient Client Experience Facilitator, Nursing & User Experience, NHSCT 2 years ago
Eleanor McWilliams
Patient Client Experience Facilitator, Nursing & User Experience,
NHSCT

Submitted on 22/12/2021 at 11:48
Published on Care Opinion at 12:57

picture of Eleanor McWilliams

Thank you for taking the time to share your experiences in accessing appropriate respite care for your child.

I am sorry you were unable to get the support you needed which has impacted on your health.I will share with Senior Management Team and I hope to have a response from them soon.

Many thanks

Eleanor

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Response from Leigh Morgan, Engagement Manager, Involvement Team, Northern Health and Social Care Trust 2 years ago
Leigh Morgan
Engagement Manager, Involvement Team,
Northern Health and Social Care Trust

Submitted on 04/01/2022 at 14:28
Published on Care Opinion at 14:28

picture of Leigh Morgan

Hello Marrt88,

My name is Leigh and I am Engagement Manager and Patient Experience Facilitator within the Trust.

I have spoken with some of my colleagues in relation to your feedback. I'd like to get a chat with you so that I can find out a little more about the issues you raise in your feedback.

I'd be grateful if you would email me on Leigh.Morgan@northerntrust.hscni.net. I look forward to hearing from you soon.

Kind Regards,

Leigh

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