I had an appointment towards the end of November for my Botox injections with a different member of staff as the doctor I was scheduled to see was taken ill. I receive Botox due the fact that I have IIH (Idiopathic intracranial hypertension) which I've had since 13 years of age, and have vp shunt in place for 27 years which is believed to be sitting on my nerves causing daily headaches. Getting the botox, lowers the pain from an 8 sometimes a 10 to a level 2 on most days, allowing me to have some kind of lifestyle, and working life
But to be advised from a staff member that I don't suffer from chronic headaches is ridiculous as not 2 but 4 neurologists have advised of this. And another dr at the queen Elizabeth around 2-3 yrs ago, feel that this would be a lot safer to receive this treatment as to have the shunt removed. I've also tried 5 medications before the Botox. I feel that this staff member did not check my medical history and had already dismissed the treatment before I entered the room, they seemed very stern and kept on about protocol, and also seemingly checked with a doctor who also advised that I don't suffer from chronic headaches. This was done within 3 mins of the staff member leaving the room.
If they checked my medical file and previous records of the treatment they would see that I have headache every single day, I have now received my Botox and already feeling the benefit of it thanks to the doctor I was supposed to be seeing. Knowing what their patients need and taking the time to find out what each and every patient requires, so patients are not put at risk.
The outcome of the appointment with this staff member left me feeling low and suffering more intense headaches and also having anxiety attacks.
I don't understand why this staff member is advising that my headaches are not chronic, when 4 neurologists have all advised the same.
I do understand that there is a protocol to follow, but when you have a complex case like mine this is something that should be taken into consideration. I have taken this as a formal complaint, as this is not good enough and should be addressed. It has taken me time to reflect on what has happened due to the stress and anxiety of not getting the treatment that I required to help with lowering the daily chronic headaches that I suffer from.
In the long run if I don't receive further Botox then there is only one other option and that is to have the shunt removed.
"Botox appointment"
About: University Hospital Hairmyres / Neurology University Hospital Hairmyres Neurology G75 8RG
Posted by D1908 (as ),
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Responses
See more responses from Angela Dixon
Update posted by D1908 (the patient) 3 years ago
See more responses from Jean MacDonald
Update posted by D1908 (the patient) 3 years ago
Update posted by D1908 (the patient) 3 years ago