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"Botox appointment"

About: University Hospital Hairmyres / Neurology

(as the patient),

I had an appointment towards the end of November for my Botox injections with a different member of staff as the doctor I was scheduled to see was taken ill. I receive Botox due the fact that I have IIH (Idiopathic intracranial hypertension) which I've had since 13 years of age, and have vp shunt in place for 27 years which is believed to be sitting on my nerves causing daily headaches. Getting the botox, lowers the pain from an 8 sometimes a 10 to a level 2 on most days, allowing me to have some kind of lifestyle, and working life

But to be advised from a staff member that I don't suffer from chronic headaches is ridiculous as not 2 but 4 neurologists have advised of this. And another dr at the queen Elizabeth around 2-3 yrs ago, feel that this would be a lot safer to receive this treatment as to have the shunt removed. I've also tried 5 medications before the Botox. I feel that this staff member did not check my medical history and had already dismissed the treatment before I entered the room, they seemed very stern and kept on about protocol, and also seemingly checked with a doctor who also advised that I don't suffer from chronic headaches. This was done within 3 mins of the staff member leaving the room. 

If they checked my medical file and previous records of the treatment they would see that I have headache every single day, I have now received my Botox and already feeling the benefit of it thanks to the doctor I was supposed to be seeing. Knowing what their patients need and taking the time to find out what each and every patient requires, so patients are not put at risk. 

The outcome of the appointment with this staff member left me feeling low and suffering more intense headaches and also having anxiety attacks.

I don't understand why this staff member is advising that my headaches are not chronic, when 4 neurologists have all advised the same. 

I do understand that there is a protocol to follow, but when you have a complex case like mine this is something that should be taken into consideration. I have taken this as a formal complaint, as this is not good enough and should be addressed. It has taken me time to reflect on what has happened due to the stress and anxiety of not getting the treatment that I required to help with lowering the daily chronic headaches that I suffer from.

In the long run if I don't receive further Botox then there is only one other option and that is to have the shunt removed. 

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Responses

Response from Angela Dixon, Service Manager for Medical Directorate, University Hospital Hairmyres, NHS Lanarkshire 2 years ago
Angela Dixon
Service Manager for Medical Directorate, University Hospital Hairmyres,
NHS Lanarkshire
Submitted on 26/01/2022 at 19:24
Published on Care Opinion at 19:24


picture of Angela Dixon

Dear D1908

Thank you for taking the time to provide feedback via Care Opinion.

As with all treatments we have to ensure patients are reviewed on a regular basis and from a governance perspective our staff are legally obliged to follow protocols and guidance set out by the Board.

I would like to reassure you that staff do look at your clinical history prior to you attending your appointment. I am sure the intention of the member of staff was to optimise your clinical outcome using the protocols we have in place.

I note you have contacted our complaints department which will allow us to review your individual circumstances and hopefully provide you with a detailed response in relation in depth understanding of the decision making.

Please feel free to get in touch with me directly at any point.

Kindest Regards

Angela

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Update posted by D1908 (the patient)

Thanks for the response, I understand about the protocols, and that staff are bound to adhere to this. But clearly the reason to get the BOTOX is to help limit the headaches which they have been doing, reducing my pain to under a level 5 most days, allowing me to have a working, and some what kind of lifestyle. Without the BOTOX my headaches were reaching to a level 8-10, on every single day,as I said this should be based sometimes on a individual case rather than a member of your staff advising that I don't have chronic headaches. And refusing to provide the treatment.

The reason I was advised to get the BOTOX is because alternative medication did not help and that the shunt could be potentially sitting on the nerves. And that this was the best option.

I've heard back from your complaints but the response was not great

Response from Jean MacDonald, Quality Improvement Co-ordinator, NHS Lanarkshire 2 years ago
Jean MacDonald
Quality Improvement Co-ordinator,
NHS Lanarkshire
Submitted on 27/01/2022 at 12:51
Published on Care Opinion at 12:51


picture of Jean MacDonald

Dear D1908

I am sorry you feel our response was not adequate.

I would ask you to contact my Patient Affairs colleagues to discuss this matter in more detail.

PatientAffairs.Hairmyres@lanarkshire.scot.nhs.uk or telephone 01355 585325

Best wishes

Jean

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Update posted by D1908 (the patient)

I am sorry as I work 9-5 this is not a option.

Update posted by D1908 (the patient)

So 3 months now and no appointment in, since Dr heath has left, spoke with my gp who advised that I should have received appointment, is this what happens when you make complaint

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