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Hypertrophic cardiomyopathy

Posted By Tweety10116

"Hypertrophic cardiomyopathy"

About: Royal Hospital for Children (Glasgow) / Cardiology (heart problems) Ward 1E

(as the patient),

Diagnosed at 11. Started medication at 13. Ups and downs and was told I will need a heart transplant, however we can't know when exactly so it has been difficult to prepare and also very scary.

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Responses

Response from Coral McGowan, Patient Services Manager, Women & Children's Services, NHS Greater Glasgow and Clyde 2 years ago
Coral McGowan
Patient Services Manager, Women & Children's Services,
NHS Greater Glasgow and Clyde

Submitted on 09/11/2021 at 12:57
Published on Care Opinion at 12:57

picture of Coral McGowan

Dear Tweety10116,

I can imagine that receiving a diagnosis at such an age will have been so scary, particularly for you, but also for your wider family. To have now lived with this for the past couple of years and knowing you still need further extensive treatment of transplant will inevitably have caused you a lot of emotional challenges.

I'm aware our Cardiac Liaison Nurse Support Team are in contact with you and your family and I would strongly recommend you get in touch with them with any concerns you may ever have, no matter how big or small you feel that is.

Additionally, our Play Service Team can work with you in regards to any preparation you feel may be appropriate for your forth-coming surgery.

I have been asked on behalf of all our teams that care for you to send our sincerest best wishes. We are always here for you whenever you may need us.

Take care

Coral

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Response from Jean MacDonald, Quality Improvement Co-ordinator, NHS Lanarkshire 2 years ago
Jean MacDonald
Quality Improvement Co-ordinator,
NHS Lanarkshire

Submitted on 10/11/2021 at 15:43
Published on Care Opinion at 15:43

picture of Jean MacDonald

Hi Tweety10116

Many thanks for your post on Care Opinion regarding your treatment in the paediatric department within University Hospital Wishaw.

I can only imagine how scary this must be for you and your family and I know you will be receiving lots of information and support but please be assured you are in the best possible hands.

I hope it is not too long before you are on the road to recovery.

Take care of yourself.

Best wishes

Jean

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Response from Keir Greenhalgh, Paediatric Clinical Director, Paediatrics, NHS Lanarkshire 2 years ago
Keir Greenhalgh
Paediatric Clinical Director, Paediatrics,
NHS Lanarkshire

Submitted on 10/11/2021 at 16:27
Published on Care Opinion on 11/11/2021 at 10:29

Dear Tweety10116,

I expect we have met in one of the cardiology clinics in Wishaw. If there is anything we can do at University Hospital Wishaw then please get in touch. Wishing you all the best for the future

Dr Keir Greenhalgh

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