"The Royal Alexander Hospital In Paisley. Ongoing nightmare"

In March 2020 l attended the Royal Alexandra Hospital in Paisley. Right at the time visitors were stopped from seeing their loved ones due to Covid.

I was admitted for an "exploratory" on my bowel after a CT scan at another hospital showed a problem. It has only taken them (the NHS) nearly 60 years for my lifelong "Colic" issue to finally be taken seriously. I now have an ileostomy. I woke up the next morning after my exploratory with an ileostomy, a bag, a "stoma".  To be quite honest 1000 characters is by no way means enough to even start with my complaints about my treatment at this hospital and it's staff. I swear l don't even know where to begin to start to tell you about this place. The care (or lack of therein) I received from the nurses, to the wards, to my surgery, to my surgeon to my after care nurse ...my supposed "5 day hospital stay"... that ended up an 18 day stay due to the surgeon's mistakes and then a truly horrendous infection due to my aftercare (again... or lack of)... to trying to get help, answers, diagnosis and finally... how to go about getting another surgeon who will do a reversal on my ileostomy as my surgeon is not willing to do one...

l was told that after 12 months l could have a reversal. Goal posts have been changed due to... yes, you guessed it, Covid. I feel like COVID has been their excuse for everything.

Im now 19 months down the line...my surgeon keeps changing the goal-posts. My ileostomy nurse refuses to contact me and in the one recent email when l contacted them with a problem, the response back was one sentence, saying to ask my GP for an urgent referral.

l have basically been left on my own, left to my own devices. Left to try and figure out where to get answers. Left to deal with this lifechanging ileostomy with no backup. No aftercare. No helpline. No apology for a lifetime being told l had "colic" only to be informed recently by my GP "you do realise that you were misdiagnosed as having colic when your whole life it indeed appears you had Crohn's disease" ?? 

Where do l start ? 

I can count on one hand on how many times l have left my home in the last 19 months...leaving your home with a stoma is a nightmare for obvious reasons.

Finally...For three years of my life from 2006 to 2009 l was misdiagnosed with stage 3 breast cancer. I was told by the oncologist at the time l had a "fatty lump"...l survived that with very little help from those professionals.

Thank god for the AMAZING Beatson cancer hospital in Glagow. 

As you have probably gathered...l'm ever so slightly bitter and twisted about my experiences.

I will not go any further...but l probably think you get the gist ??

Thank you for reading