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Help with my MND

Posted By turkeybc33

"Help with my MND"

About: Specialist Nursing Services / Community Matrons, Nottingham West

(as the patient),

I was diagnosed in February 2021 at the age of 55 with Bulbar MND. It was a huge shock to myself, my husband and our 6 children. I was assigned my community nurse. She has been amazing. She comes to my house on a monthly basis and weighs me etc. We talk about concerns, things I have been doing and she always listens and helps me to sort out any medication etc.Gives me ideas to help with any issues raised. My husband doesn't cope very well and it's good to have someone who isn't directly involved and is impartial doesn't get upset etc.

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Responses

Response from Debra Tyler, Clinical Lead, Nottingham West Community Nursing, Community Health Services 2 years ago
Debra Tyler
Clinical Lead, Nottingham West Community Nursing,
Community Health Services

Submitted on 30/09/2021 at 15:07
Published on Care Opinion at 15:07

Thank for your feedback on the care provided by the Community Matron in Nottingham West. I am glad that the visits make a real difference to you at what is a difficult time for you and your family. It is reassuring to know that our staff are providing the appropriate care and support that you require.

We always provide this feedback to the staff involved and this is appreciated.

Kind regards,

Deb Tyler. Clinical Lead.

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