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"Painful hysteroscopy"

About: Nevill Hall Hospital / Gynaecology

(as a service user),

I am 63 years old and noticed some light spotting about 6 weeks ago. I reported this to my GP, who sent me for an internal ultrasound. This identified slight thickening of the lining of my uterus (7mm), so I was sent for a hysteroscopy at Nevill Hall hospital, in Abergavenny. I received a leaflet in advance, which said 'some patients experience discomfort. If you find the procedure uncomfortable, please discuss this with the clinician'. it also stated that one of the frequent risks was pain. However, on the same page it said 'You will be offered local analgesia', so I didn't worry too much.

When I met the clinician in advance of the procedure, he explained any discomfort would be like period cramps. I asked about pain relief, but he repeated it would just be like period pains, if I experienced any pain at all. As I used to have dreadful period pains, have had coils inserted and removed, and have given birth naturally twice - once without pain relief - I thought I'd be fine with this. I'm usually pretty tough when it comes to pain, in any case. 

When the procedure started, I felt some discomfort when the hysteroscope went through my cervix, and remember saying 'Ow'. Then the most incredible, searing, tearing pain I have ever experienced - I guess it must have been the pressure of the saline. I found the arms of the bed to grab onto, and could hear myself shouting -No no no no no, stop stop stop-. The plan had been to take some pictures, followed by taking a sample of the lining of my uterus lining, but the clinician stopped the procedure having had a look and taken some pictures. They may have spoken to me and asked questions during this time, but I have no recollection of anything except the pain. When I finally opened my eyes, the clinician was nowhere to be seen, and the two nurses were asking if I was OK. I was extremely shaken and very out of it, from the pain and the shock.

After I'd recovered for a few minutes, still with my legs in the supports, and lying back in the examination chair, the nurses told me I should go and get dressed, which I did, very shakily. They then showed me out of the room to the clinician's room opposite. Another doctor was standing in the doorway of his office, and I wasn't asked in, or asked to take a seat. I just stood in the doorway, still dazed and very shaken. The clinician looked up at me from his desk and said everything looked fine and joked that he would give me a 10 year warranty, as all seemed in order. The nurse then pointed me towards the exit door and I was on my way out of the department, to drive myself home. There was no offer of anywhere to sit and recover. I felt a complete wimp, and as if I'd made a terrible fuss about nothing. And very confused. As I mentioned earlier, I'm usually really brave but this was the worst pain I'd ever experienced.

I had phoned the hospital the day before the procedure, as I'd noticed in the patient leaflet that it said I needed someone with me to take me home. The person I spoke to said that was because I would be given local anaesthetic, and if I had an accident on the way home, my car insurance would be invalidated. She said it was at my own risk if I attended on my own and drove myself home. Having driven many times after local anaesthetic, coming home from the dentist, I took the decision to attend the hospital on my own, as it was short notice to find someone to drive the 40 mile round trip, and I wanted this done as soon as possible in case there was a risk of cancer. As a result of this conversation I had fully expected to be given a local anaesthetic for the procedure. 

I got home and looked up 'Painful Hysteroscopy' online and was appalled (and partly reassured) to see that up to 25% of women experience severe pain. I had no idea there was an option to have this procedure done under general anaesthetic, although I probably wouldn't have gone for it anyway, as I was only expecting period pain type cramps. I have regular lower gastrointestinal endoscopies and sigmoidoscopies without anaesthesia and bear the discomfort pretty well. So I assumed this would be similar. 

I have gone from being pretty fearless and confident to being terrified of going back. This only happened today. I wanted to write it down while it's fresh in my mind. 

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Responses

Update posted by Sandy G (a service user)

I engaged an advocate and complained. We also went to the Ombudsman.

The consultant and nursing team at Nevill Hall said they had no recollection of my procedure and no record of me being in pain. The consultant said he would take pain scores from all outpatient hysteroscopy patients in future.

I would be interested to hear whether they are doing that at Nevill Hall Hospital.

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