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"Insensitive letters"

About: North Devon District Hospital / Cancer Services North Devon District Hospital / Urology

(as a relative),

My father has cancer and is dying, he is confused from mental deterioration and weak from body deterioration . I found the letter received about his diagnosis from the urology department in North Devon to be insensitive and unreasonable to his condition. It was written in the letter, after having a telephone consultation, that his weight loss was intentional and that he is trying to reduce his weight himself, which is completely inappropriate, considering what he is going through and his terminal illness. He is not "intentionally" losing weight, his body is shutting down and he is dying, there is nothing "intentional" about that. 

Additionally, it is written that my father is being offered treatments for other illnesses caused by the shutting down of his body, that require going into hospital, which he has no choice but to refuse because he cannot even make it to the toilet without a walking frame and even then, he can only do that on good days. So how will he make it to the hospital to get treatment? The letter seems to be implying that my father has made his own decision and choice to refuse the treatments, and has even made a point of listing the numerous offers he has been given, as if he can  accept them. It says things like that he has not "changed his mind" to come to the hospital, and that he has "refused". Well what else can he do? If he was fitter and healthier I am sure he would be more than willing to have all these treatments and it is heartbreaking to read the letter as if he has a choice and everything is just as simple as that. This letter lists everything that needs doing and how if things advance he will need to go to the Emergency Department; but he physically cannot, and this only highlights, that there is nothing left that can be done to help him.

There is no understanding of how miserable and confused he is, or how hard living with such a debilitating illness is. No matter how many times a treatment is offered, my father is in no fit state to do anything, so how can he accept the treatment? This letter makes it seem like he does not want treatment, as if he does not want to get better, but there is no consideration for how tiring, uncomfortable and draining going into hospital actually is for him. Every time my father goes into hospital he gets weaker and loses more weight. I do not blame him for wanting to stay at home when he is in the condition he is in. I know my father and I know if there was any way for him to get better he would take it, but his disease is too far gone and he is too weak to go into hospital.

If these letters could be more understanding towards patients and how difficult it is for them to even carry out and continue with basic day to day tasks, it would be appreciated, because I feel the letter we received was completely inappropriate and worded incredibly poorly when referring to someone with such an advanced disease and such mental and physical deterioration.

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Responses

Response from Paula Howells, Senior Medical Secretary (Northern Services), Urology Team (Northern Services), Royal Devon University Healthcare NHS Foundation Trust 2 years ago
Paula Howells
Senior Medical Secretary (Northern Services), Urology Team (Northern Services),
Royal Devon University Healthcare NHS Foundation Trust

I have worked in the NHS for over 35 years as a senior Medical Secretary in various specialties. I currently work in the Urology Department providing PA services to the clinical team.

Submitted on 01/09/2021 at 13:38
Published on Care Opinion at 16:13


picture of Paula Howells

Dear violetmk76

Thank you for your feedback. Please may I firstly say how very sorry I am to hear of your father's current condition. Also I am very sorry that you are so upset having received letters from the Urology department that you found to be insensitive and unreasonable to his condition. We would welcome the opportunity to address your concerns in more detail and to that end I wonder if you would like to contact our Clinical Nurse Specialists in Urology on their direct line - 01271 311877 who would be able to talk through your concerns in more detail. Alternatively my direct line is 01271 314129 or my email is paula.howells@nhs.net and again I would be more than happy to see if there is anything I can do to help further.

Again please accept our sincere apologies that, on this occasion, the Trust has fallen short of providing our usual high standard of service we aspire to for all our patients and relatives.

Kind regards

Paula

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