"Lack of support feel isolated"

Lack of support feel isolated; not enough training into diabetes type 1 care especially within hospitals

1. Severely let down during pregnancy - no one listened; lost my notes confirming I had type A flu; didn’t know which ward to put me into before my baby was born; long time before I actually got admitted; left in isolated room; lack of empathy from carers; resulting in ketoacidosis emergency surgery and intensive care for both me & baby - happened whilst in the care of altnagelvin. Psychological scarred from experience.

Was never given option or even discussed to have statin prescribed to me as I’ve been diabetic type 1 for 30 yrs; had heart attack 6 months ago age 40. Rang ambulance one evening in December 2020 explained severe severe chest pain; waited hour and half still no ambulance dispensed. Went to bed until 2.40am when pain started again. Went to SWAH enniskillen; waited 22 hrs in A&E before being admitted to ward; no facilities for heart echo or stent procedure. Had to wait 2 further days for heart ambulance to move me to altnagelvin.

I feel that services are very poor especially in diabetes care. Had to call GP several times re foot appt apparently these have now been moved to hospitals. Attended foot appt eventually one week ago. Assessment tool was very basic - I did not feel I was assessed correctly. I feel after 30 yrs of having diabetes things have gone backwards in terms of care and support. Pregnancy care esp pre pregnancy has also been appalling and far from sufficient- emotionally especially. There are so many recommendations I could advise - but feel I would be wasting my time as there’s no money to make things better!