"Admission to hospital"

I was admitted to Pilgrim in the early hours of the morning after waiting 3. 5 hours for an ambulance while I had chest pain. When we reached the hospital the care in resus was swift and amazing. In the morning I was moved to a&e waiting where I had NO blood sugar checks despite being a type 1 diabetic! I was finally moved to IAC in the afternoon, no drinks or food were offered all this time, I was not even put on a fluid drip to stop me dehydrating, when I got to IAC my sugars were checked for the first time along with keytones.

I discussed with the ward staff I am autistic among other conditions I explained I needed to keep as close to my normal routine as much as possible, I was told there was no issue and the care of my medication was allowed to be my responsibility, when I was transferred to AMSS I was told I was not allowed to take any epilepsy medication (you can NOT stop epilepsy medication) I was also not allowed to administer my Insulin which I was moaned at for poor diabeties control this happened because the doctor who listed my insulin forgot to sign the authorisation.

So 3 days no insulin, Keytones started building! When I explained to staff that I was Autistic and it had been agreed with the doctor on IAC that I was allowed to administer my own meds to keep my routine as normal as possible, they said they didn't care! That they are sick of patients dictating that we want things that are away from the normal routine of the ward! I was FINALLY authorised that I was allowed my epilepsy meds, 6 hours late! This is likely to have contributed to the 2+ seizures on ward as well as the extremely long run of seizures which resulted on the home transport ambulance which also landed that an emergency ambulance needed to be called while I was on the transport!