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"Being Denied Treatment by the Clinic"

About: Highly Specialist Services / Gender Identity Service (GIS)

(as the patient),

I sought a referral to Sheffield GIC in late 2016. I socially transitioned at 16 in 2015 and realised, as I met other trans people as an adult who had accessed trans healthcare services, that medical transition was possible and something I needed. While on the waiting list, I accessed a private clinic, GenderCare, and began HRT in May 2018 on NHS prescriptions under a shared care agreement between my GP and GenderCare.

I underwent my first assessment at Sheffield in August 2018, my second in Dec 2018 and my third in April 2019. At the end of January 2020, I finally received their response. It was a one page letter saying they couldn’t come to a decision and wouldn’t give me treatment. They wanted a “second opinion” from London GIC. In reality this meant restarting the process. I had over a year of waiting for a first assessment again which occurred in April this year. My second assessment with London GIC is scheduled for next month. If I ever receive treatment from the NHS GICs, it will be years after I would have received it if Sheffield GIC had accepted me. I tried to re-access support from GenderCare but, because of Sheffield’s decision, they refused to take me back because Sheffield’s letter marked me as a “complex” case. I am going to have to somehow access surgery privately because, based on the GIC timeline, I’ll be in my late 20s by the time I get GRS. My dysphoria is too severe to bear.

In February 2020, I sent an email to Sheffield GIC asking them to please reconsider. I can forward this email on, if needed. I rang the service several times in the following months to follow up on the email and was always told the Doctors were working on a reply, but I never received anything. As the months continued, I gave up hope.

I don’t believe this treatment was fair of the service. I was never given an explanation for their decision, but I feel - based on the appointments with the clinicians and the things they said about my gender and dysphoria - that this occurred because of my non-binary transition. This is also based on the fact that this kind of denial of healthcare is often faced by non-binary people whereas all the trans men and women I know were granted healthcare after meeting the requirements for the diagnosis.

I understand that assessments are necessary, but it is clear from the reports that I have a long history of acute gender dysphoria and Sheffield’s decision letter didn’t dispute that. Not only that, but the HRT I was already on had clearly improved my health.

Rather than improving my quality of life, this service has devastated my mental health and, as it stands now, I cannot see how to move forward on alleviating gender dysphoria.

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Responses

Response from Helen Goodson, Peer Support Worker, GIS, Sheffield Health and Social Care Trust 2 years ago
We are preparing to make a change
Helen Goodson
Peer Support Worker, GIS,
Sheffield Health and Social Care Trust
Submitted on 01/09/2021 at 14:33
Published on Care Opinion on 03/09/2021 at 09:38


Thank you for your feedback, at Porterbrook we welcome all feedback as it helps us to shape our services for all our clients.

Unfortunately, we are unable to comment on individual cases through Care Opinion. However, we would like to invite you to contact the clinic on Porterbrook@shsc.nhs.uk where we will do our best to help you and explain the reasons why the clinic made the decisions it has.

We are happy to comment generally on the issues you have raised in your feedback.

As always patient safety is our priority, therefore we carry out a thorough assessment with people to make sure that

We get to know you as a person. The right decisions are made based on the information available to us at the time. The person meets the diagnostic criteria as specified in DSM-5 and ICD-11.

Where we feel that further assessment is needed by someone, we have several options available to us generally known as extended assessment, this is there to help clinicians and the person at times understand a particular point further and allow for further exploration this. When we suggest further assessment to people, we would explain the reason why and how many sessions this may be for, before reviewing a case in Multi-Disciplinary Team meetings (MDT).

From the MDT meeting decisions are made about the next steps for a person and occasionally we may say that we don’t think the service is right for them at this time. Any decisions and what the next steps are, will be explained to a person.

We recognise that people may want to seek treatment privately and are very welcome to do so, although we would always recommend a person does thorough research on the providers first.

When people have undertaken private treatment, it is worth bearing in mind that it has no bearing on what we, as an NHS clinic provide for our people.

Where people may be struggling with their Mental Health, we would recommend people speak to their GP or access their local IAPT service for help.

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