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"Keeping patients in the loop"

About: St Thomas' Hospital / Gastroenterology

(as the patient),

Firstly, I must say that the hospital is beautiful, clean and the staff on the ground are incredible. My issue is with the procedure waiting time and keeping patients in the loop. I found this intolerable. I have spent the last two years sleeping in a chair because of reflux. I waited over a year to be seen and have a bravo fitted under sedation. This was unsuccessful so I was put on the list to have the procedure under a general anaesthetic. I called almost every week, desperate for the procedure and was told each time by the head nurse that as soon as the list became available, I would be put on it. I had a missed call on Monday so I called on Tuesday I was so excited to finally get an appointment, and see the light at the end of the tunnel finally. What I was told was that I hadn't been put on the list and would have to wait until August to see if I was put on then. I couldn't believe my ears. It felt so cruel and unnecessary that I hung up and burst into tears. I have depression and PTSD, and it triggered me. The thought of having to suffer indefinitely was almost too much to cope with. I can't stop crying. I feel betrayed and mislead. It's unacceptable to treat people this way.

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