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"Rheumatology"

About: The Ulster Hospital / Outpatients

(as a service user),

Feeling disappointed that every time I have a rheumatology appointment it feels like I’m making my symptoms up, I had a review today and cried after I got home, as I left no further on than before and I don’t know what’s next, and it’ll probably take another year to find out as I apparently keep falling through the net and because of this my diagnosis has taken forever and I was misdiagnosed in the beginning.

My joints are constantly sore but as there’s no obvious heat or inflammation on the day things are always being dismissed and I’m left feeling like I’m making it all up. although psa doesn’t always show external inflammation but my rheumatologist doesn’t seem to realise this. My orthopaedic consultant left my hip joints and knee joints in the hands of my rheumatologist she’s yet to mention them or X-ray end them even when I’m sore and it’s been over 6 years since they were touched or imaged. Beginning to think I’m going to be like this forever as no one is taking me serious.  

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Responses

Response from Conor Campbell, Senior Manager, Assurance and Improvement, South Eastern Health & Social Care Trust 2 years ago
Conor Campbell
Senior Manager, Assurance and Improvement,
South Eastern Health & Social Care Trust

Assurance and improvement

Submitted on 27/05/2021 at 13:43
Published on Care Opinion at 13:43


picture of Conor Campbell

Hi Psa20

Thank you for sharing your story.

I appreciate the concerns that you have described.

Please call me on 07715801634 to share your details in order that I can arrange a review of your individual case and consideration of appropriate next steps.

Thank you very much.

Best wishes

Conor

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