This is Care Opinion [siteRegion]. Did you want Care Opinion [usersRegionBasedOnIP]?

"A unique and unparalleled epilepsy Service."

About: Intellectual Developmental Disabilities /Learning Disability Services - Community / Epilepsy Service Nottingham University Hospitals NHS Trust - Queen's Medical Centre Campus / Neurology

(as a parent/guardian),

For a number of years our daughter has been receiving Epilepsy management and support from the NHS Nottingham University Hospitals.

There have been a number of occasions that I have required prompt advice from the Epilepsy team.

I recently contacted the team with regard to a change in circumstances relating to my daughter; requiring a well thought out update to a specific component of my daughter’s Epilepsy Management Plan. There were overlapping issues relating to this changing situation. As on all occasions previously the team analysed the relevant facts and information and devised a very satisfactory solution to remedy this difficulty.

Supporting a family member with complex epilepsy can at times be stressful and daunting. From making the initial phone call to the Secretary, all the way through to the issue being resolved; all members of the Epilepsy team worked in a friendly and professional manner to solve this complex issue and bring about peace of mind. I believe that this specialist support system works in a very efficient way and relieves pressure on parents, carers and other areas of the NHS.

I feel very fortunate that this superior service is recognised and provided by the NHS.

Without this specialist service myself and other parents/carers would have great difficulty in sourcing an appropriate alternative. This service is unique and unrivalled.

Do you have a similar story to tell? Tell your story & make a difference ››

Responses

Response from Sarah Pashley, Nurse Consultant - Epilepsy, IDD, nottinghamshire healthcare NHS trust 2 years ago
Sarah Pashley
Nurse Consultant - Epilepsy, IDD,
nottinghamshire healthcare NHS trust
Submitted on 13/05/2021 at 16:30
Published on Care Opinion on 14/05/2021 at 08:38


Thank you very much for your comment. Nottinghamshire Healthcare NHS Foundation Trust and Nottingham University Hospitals work together to provide a joint epilepsy and learning disability service. We are very pleased to hear our service is meeting your daughter's needs.

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful
Response from Nottingham University Hospitals NHS Trust 2 years ago
Nottingham University Hospitals NHS Trust
Submitted on 04/06/2021 at 12:04
Published on Care Opinion at 12:04


Thank you for taking the time to get in touch and for sharing this great feedback for the Epilepsy team. We are very proud of the service offered to patients and I’m very pleased to hear that you and your daughter have been supported so well throughout her treatment and during her ongoing care. Feedback like this can make a huge difference to staff and I have shared your very kind feedback with the Epilepsy team.

We all wish you and your daughter well for the future.

Best wishes

Anthony Harbottle
Patient Experience Officer

Opinions
Next Response j
Previous Response k