"Frustrated by lack of options from GP"

I have been suffering with unexplained pain for four years and have been diagnosed with fibromyalgia. However I have also developed fatty lumps and lipomas throughout my body.

GPs regularly tell me that some people just get them but they cause me severe pain. I cannot walk or straighten my arms and legs.

After doing my own research I came across Dercums disease and have tried to discuss this with various GPs. One GP told me it can’t be because it’s incredibly rare. Another two have told me that even if it is there is no treatment anyway other than removal of painful lipomas.

I was in accident and emergency recently and was told that my blood results have always been abnormal and they can’t understand why the GP is not investigating more. He says they have never been normal and it is obvious I have something wrong. Saw a consultant who is writing to my new GP to ask them to carry out further referrals to rheumatology and dermatology.

I live alone I can’t work and without a diagnosis how can I access support for help with day to day living? It has gotten so bad I actually took an overdose last November but still am trying to get a GP to even explore the illness with me. I’m worried as this is a progressive illness and has even led to some people having to use wheelchairs to get around. Do you have any suggestions please?