We knew as a family our mum had some degree of confusion, and this was confirmed when we brought her to an appointment for dementia screening. Mum walked into her appointment in March 2020, there was a sign on the door clearing stating dementia screening of which she could ask why she was there - "did they think she was mad" is what she asked us. Mum was seated in front of a display of leaflets advising on how to cope with dementia, ”support available“ etc. and again Mum could read and see these, again adding to her distress and questioning why she was here. We were then separated from mum, she was taken into a room with a nurse and student. My sister and I were taken into another room with a social worker.
Eventually we were reunited when we were advised our mum had dementia and told what she had scored on the assessment. We were left with this information and advised a consultant would be in touch with us. We heard nothing, had no contact with anyone about this diagnosis, no support, no guidance on what to expect as her condition progressed. Despite us contacting the dementia team and requesting a follow-up review as mum's condition was deteriorating quite rapidly, again we were advised a consultant would be in touch. Mum passed away December, 2020 cared for at home and supported by her loving family without the support, guidance or input from any dementia team.
"Lack of support"
About: Memory Services Memory Services Portadown BT63 5QQ
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