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"Inadequate rehabilitation"

About: Lanarkshire Community Services / Adult Speech and Language Therapy Lanarkshire Community Services / Occupational Therapy Lanarkshire Community Services / Physiotherapy Udston Hospital University Hospital Wishaw / Stroke Unit (Ward 11)

(as a carer),

My father had a stroke in May. He was moved from Wishaw to Udston from where he was ultimately discharged in August. He was discharged because occupational therapy said he was becoming "too dependent" . The only community OT support he received was a shower chair. There has been no community OT rehabilitation.

The physios and speech and language are no longer supporting him because they say he is non-compliant when in truth he has zero energy which, apparently, is a common stroke symptom and which the community teams should have factored in.

This is someone who is tee-total, who hasn't smoked for fifty years and who up until Covid was swimming five days a week. I am disgusted by the utterly unprofessional way Udston have just washed their hands of him and settled for managed decline instead of diligently supporting his recovery in an appropriate way. As a minimum, given Covid, there should have been multiple group sessions using video contact so that there was constant S and L input from which many people could benefit. One therapist visiting once a fortnight is totally inadequate. They asked me to get him an i-pad which I did but he needs support to use it.

Community physio should have known how to work with his energy levels and set small achievable goals which they supported him to achieve

I urgently need dietitian input because not only is he fatigued but pre-diabetic and very run down. The stroke nurse is doing the best they can while the dietitians are tying themselves in knots to get out of helping.

Why is it even possible to discharge someone on the basis of them "becoming too dependent" without a plan being put in place to help them get back to appropriate levels of independence?

How do I get the proper support he needs to get his recovery back on track? Even if I wasn't doing eighteen hour days between caring for him and working from home, (with only the barest community personal care support) this is not in my skill set and I'm fairly well educated. Heaven help some of the families of patients if their relatives are being discharged by Udston in the way my father was.

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Responses

Response from Sam Cairns, Project Manager, North Lanarkshire Advocacy 3 years ago
Sam Cairns
Project Manager,
North Lanarkshire Advocacy
Submitted on 08/12/2020 at 11:24
Published on Care Opinion at 15:15


Your Dad might benefit from independent advocacy, however, you sound as if you are doing a great job in speaking up for him. I would be happy to signpost you or offer some help directly.

Sam Cairns

07725 792 133

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Response from Pauline Downie, Professional Lead for Speech and Language Therapy, Speech & Language Therapy Services, NHS Lanarkshire 3 years ago
Pauline Downie
Professional Lead for Speech and Language Therapy, Speech & Language Therapy Services,
NHS Lanarkshire

Speech and language therapy provides treatment, support and care for children and adults who have difficulties with communication, or with eating, drinking and swallowing.

Submitted on 08/12/2020 at 14:58
Published on Care Opinion at 14:58


picture of Pauline Downie

Dear AnK20

I am so sorry to hear about your father's experience of speech and language therapy after his stroke.

If you would like to call me with more details I can look into what has happened.

Kindest Regards

Pauline

Telephone 07776161191

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Response from Máire Doyle, Physiotherapy Lead, University Hospital Wishaw, NHS Lanarkshire 3 years ago
Máire Doyle
Physiotherapy Lead, University Hospital Wishaw,
NHS Lanarkshire
Submitted on 08/12/2020 at 16:03
Published on Care Opinion at 16:09


Dear AnK20,

Thank you for taking the time to get in touch regarding your fathers rehabilitation journey.

I am sorry to hear he has not recovered after his stroke and is still affected by significant fatigue. I know this will have been a very distressing time for both you and your father. I am also very sorry to read your father has not had the input you would have expected.

It would be beneficial for us to look into your fathers case further. One way of doing this is by calling or emailing the Patient Affairs Team.

Email: PatientAffairs.Wishaw@lanarkshire.scot.nhs.uk or telephone no 01698 366558.

Equally if I can help further from a physiotherapy perspective don’t hesitate to contact me on 01698 366440.

Máire

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Response from Fiona Cross, Occupational Therapy Team Leader, University Hospital Wishaw, NHS Lanarkshire 3 years ago
Fiona Cross
Occupational Therapy Team Leader, University Hospital Wishaw,
NHS Lanarkshire
Submitted on 08/12/2020 at 16:31
Published on Care Opinion at 16:31


picture of Fiona Cross

Dear AnK20,

I am sorry to hear of your Dad's recent hospital stay and the issues that you have raised around the Occupational therapy input, discharge planning and community follow-up.

If you would like to get in touch with me, I would be keen to discuss the specific issues around what has happened,

regards

Fiona Cross

Team Lead Occupational Therapist

Tel 01698 361100 dect 5851

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