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"Poor Communication"

About: General practices in Greater Glasgow & Clyde Royal Alexandra Hospital / Neurology

(as the patient),

Since December 2016 I have been attending GP appointments about a range of symptoms which has eventually led to me struggling to get out of bed some days, falling over and loosing balance far more often that I should be amongst other things. 

I was passed around various GPs for various blood tests till late 2018 when one decided she had seen something similar before and believed I should be referred to the ENT, I was seen by a Neuro-Otologist in March of 2019 when it was decided that they did not believe that is what I have. An MRI was done at this time also, which took a number of calls to my GP for the results, which varied depending on who I spoke to. 

At first I was told there was a small lump behind my ear, then I was told there was nothing, then again I was told there was in fact a small lump however nothing to worry about, before getting a letter informing me there was no further action needed. My symptoms still persisted and each flare up I had seemed to be worse than the one before.

By December 2019 I fell on a set of concrete stairs whilst at work. After speaking to another doctor they mentioned that the Neuro-Otologist I had seen 9 months earlier had said recommended I see a Neurologist. I was neither referred to a Neurologist or told about this at the time. By May 2020 I received a telephone consultation where we once again went over the problems I had been having, It was decided that due to Covid restrictions I would have to wait till I could get in for more testing (completely understandable)

Then completely out of the blue I was called in November by a different Neurologist who told me I did in fact have what the GP in 2018/19 thought it may be and I was to go on to long term medication. Very little was explained about this the consultant repeatedly cut me off whilst I was trying to ask questions, saying my GP could advise when I picked the prescription up and I was told  followup appointment would be arranged for 6 months time.

I then contacted my GP immediately as the only thing I knew about this medication was that a common side effect was the same as one of my symptoms. My GP advised this was common in Neurology medications but could not tell me why it was prescribed or what it was supposed to help. My GP then told me it was out of their hands. 

3 weeks have now passed, I have not started the medication and no one has been able to advise why any of these decisions have been made. Both consultant and GP have completely dismissed my concerns and repeatedly cut me of whilst trying to explain anything.

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Responses

Response from Elaine Burt, Chief Nurse, Regional Services, NHSGGC 3 years ago
Elaine Burt
Chief Nurse, Regional Services,
NHSGGC
Submitted on 07/12/2020 at 14:39
Published on Care Opinion at 14:39


Dear 1029384756,

I was very sorry to read of the difficulties you have had trying to understand what is wrong with you and what to expect from your medication. It must be a worrying time for you and I would like to take the opportunity to apologise to you for your poor experience..

I have spoken with my colleague Graham Christie who is the Clinical Service Manager for Neurology and he is happy for you to contact him to let us help you. Graham's contact number is 0141 201 2548.

Thank you for taking the time to write this post and I hope we can assist you.

Kind Regards

Elaine Burt

Chief Nurse

Regional Services

NHS Greater Glasgow and Clyde

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Response from Elaine Burt, Chief Nurse, Regional Services, NHSGGC 3 years ago
Elaine Burt
Chief Nurse, Regional Services,
NHSGGC
Submitted on 07/12/2020 at 22:57
Published on Care Opinion at 22:57


Dear 1029384756,

Thank you for taking the time to call today. I am glad you were able to speak with Graham our Clinical Services Manager.

I know he has arranged to assist you with a further appointment with a Consultant Neurologist which I hope will provide you with further reassurance. Graham has also offered to follow up with you after you've spoke with your GP about trialling your medicines.

I hope you found the time spent with Graham to go over things together was helpful and you feel more supported.

Kind Regards

Elaine Burt

Chief Nurse Regional Services

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