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"Trying to get a diagnosis 2 weeks on"

About: General practices in Lanarkshire University Hospital Monklands / Emergency Department

(as the patient),

I thought I  was having a stroke. I called 999at 11;30 ,am. By 13:30 I had heard nothing so I phoned again and was told I was in the queue. An hour later an ambulance driver called me to tell me they would get to me when they could.

At 16.30 I phoned again. By this time i was so distraught I could hardly talk. The ambulance driver called me again to say I just had to wait. At 18;30 I called 111 and they said I should go to A&E at Monklands on my own. I got my neighbour to take me.

The waiting room was empty except for ambulance drivers.  I said "oh so you are picking people up?" They said only if they have COVID symptoms. 🙄 I waited another 5 hours to be seen by a junior doctor who asked me questions then went out and talked to the neurologist then came back and talked to me again. They didn't do any tests. Scans or xrays. They just decided by looking at me I had Trigeminal Neuralguia gave me pain killers and sent me out the door. They told me to see a GP within 24 hours. 

It took me a week to get a GP appointment and its been the same thing. No tests, no referrals just a 3 minute exam by someone who is NOT a neurologist. 

Im still in a lot of pain, I still have no answers and now I don't know what to do. Do I wait for the junior GP to play telephone with a neurologist? Do i wait for another attack of pain and numbness or TIA (we do not know it was not a TIA because no tests were or have been done.

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Responses

Response from Gavin Dolan, Senior Nurse - Medical Directorate, University Hospital Monklands, NHS Lanarkshire 3 years ago
Gavin Dolan
Senior Nurse - Medical Directorate, University Hospital Monklands,
NHS Lanarkshire
Submitted on 04/11/2020 at 00:00
Published on Care Opinion at 00:00


picture of Gavin Dolan

Dear Godsgirl,

Thank you very much for taking the time to leave feedback on the Care Opinion platform. I very much appreciate you taking the time to be so honest and frank in your feedback.

I was sorry to learn of your experiences as you set out in your feedback. It sounds like you have had a terrible experience and equally, the ongoing pain that you have must be very debilitating and frustrating. I was sorry to learn of your wait on an Ambulance after dialling 999 - It would be unfair of me to comment on any advice you were given by the service as I can only assume that they were extremely busy when you called. I would hope that colleagues in the Ambulance Service are able to reply to you via this platform and hopefully give you some peace of mind and some answers to your questions.

In relation to coming to the ED at University Hospital Monklands, I am very sorry to hear that you had to wait 5 hours to be seen by a clinician. This is an unusually long time to wait to be seen in ED but unfortunately, as the pandemic continues to evolve, so too does the demand on unscheduled care and again, unfortunately, I can only surmise that we had a very busy department at the time. Nonetheless, it was a very long time to wait and I apologies again for the time you had to wait to see one of our clinicians. It is an unfortunate fact these days during the pandemic that when people see our waiting room empty or with a only a few individuals within it at any given time, they assume we are quiet. In actual fact, it is probably an indicator more that we are managing to safely adhere to strict social distancing guidance and continue to ensure our patients and their relatives remain safe in our department as much as practically possible.

Again, I am very sorry to learn of your ongoing issues around pain and not really knowing where to turn to for onwards care. I would like you to know, that we are open at University Hospital Monklands Emergency Department 24 hours a day, 7 days a week over 365 days a year and will see any patient who presents with an Emergency that is urgent, time critical or life threatening. We would always encourage patients to use our emergency service wisely and if not critical or life threatening then to engage with your GP for onward management and referral if appropriate. It sounds very much like you need to engage with your GP and suggest onward referral to a Neurologist if that is what you believe to be the right course of treatment / appropriate referral to try and get to the bottom of the problem. Please don't be frightened to re contact your GP if you feel that your symptoms are not improving or you feel the pain is worsening. I am really sorry that you are having these issues and can absolutely appreciate your frustrations. I would very much feel like you do also if this were my situation.

I hope you manage to get the right help you need very soon and that your GP is able to signpost you to the right specialist if required.

Best wishes,

Gavin

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