"Basic patient care lacking "

Taken by ambulance from Chase Farm (who were wonderful) following seizure. ED very good. Then moved to MSSU where it all changed. Apparently I was high risk of falls but no one explained this. In fact no one communicated anything - even how to order food. I have autism and hyper sense to smells, textures and can only eat certain food. Tried to explain this but wasn’t noted and no one had time to listen who could understand. Wasn’t helped by it being 33 degrees outside. But the HCA and Nurse didn’t want me to get out of bed even to the toilet. When I asked for help twice I was told to wait which meant I wet the bed (so embarrassing). No one explained results of previous MRI until I left. No one told me how long I would be in. At one point I fell and the HCA grabbed me by my underwear to pull back upright. I work as an HCA and we are trained to slow the fall then sort it out. Same HCA also grabbed me by wrists to stop me going to toilet as she wanted me to use commode so wet myself again - surely better to support to toilet to maintain dignity? Offered one cup of tea a day only and water jug changed once a day despite the temperature. When I explained I couldn’t eat anything on the menu (it took a day to find out where the menu was) they couldn’t take me to buy something at costa. A friend tried explain yet nothing happened so was left with what he could bring in as they said otherwise as they couldn’t let me go down assisted to costa it was a glucose drip or nothing.

Severe headache and stomach ache kept getting paracetamol that made me sick so no improvement until a lovely doctor came at 3am to look and gave Intravenous painkiller so could sleep. She said needed further investigation of stomach but nothing on discharge notes so guess nothing else happening there? Staff need training on Aspergers/hyper sense and issues really as they aren’t obvious but have basic effect on patient comfort. No form of entertainment in MSSU at all and spent whole time being told to get back into bed and stop being naughty. Made to feel like a child and a nuisance. Lack of communication was biggest issue with discharge notes and SHO saying one thing and neurologist another. Everything is electronic patient records but nothing communicated to patient and basic patient care seems to have been left at the wayside. I was away from home with no one near yet they couldn’t help me downstairs to buy toothpaste or underwear etc - in fact only had a shower after i repeatedly asked the HCA on the day I said I was discharging myself if they didn’t discharge me. They had run out of gowns so had to stay in same clothes for 5 days. Beds only made once a day which isn’t great when you are being encouraged to stay in them not get up or into a chair.

Physios were wonderful. Doctors good particularly the night one but not sure why info on what she did is not shown as GP wants to get investigated . HCAs not good. Didn’t really see nurses as too busy.