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"Overall, I have nothing but praise and gratitude for the Breast Cancer Centre"

About: Western General Hospital / Edinburgh Breast Unit (Ward 6)

(as a service user),

It was a shock in the middle of the COVID-19 lockdown to find a large lump in my armpit. But the GP at Gracemount Medical Practice acted swiftly to bring me in for examination, and on to the Breast Clinic for a one stop shop scanning and diagnosis.

The result was confirmation of breast cancer which had spread to one lymph node. I was put in the care of Mr Nageh, who has to be the kindest, most attentive surgeon I have ever encountered. He took great care to explain every aspect of my condition and his proposed solution, drawing diagrams to help me understand.

As I had other health issues, he took advice from a cardiologist and ensured that I had a very full examination by a consultant anaesthetist, Dr McNarry. This gentleman was similarly attentive, and his dry sense of humour was just what a terrified patient needed.

It was decided that I should have a wide local excision (lumpectomy) and axilla clearance. Once in hospital, I cannot name everyone but I have to say that the staff were all wonderful. Nothing was too much trouble. I was fearful going in, especially as visitors were not allowed, but sharing a large airy room with two others meant I was not alone.

The food was good, and I was pleasantly surprised to get iced water, topped up regularly. Obviously having surgery isn’t pleasant, but the care I received was first class, and has continued  with my breast care nurse Fionnuala (probably spelled that wrong, sorry). I await the next stage of radiotherapy with some trepidation but my experience so far has been so positive.

The only negative to report on is the dreadful problem for me in getting parked at the breast clinic. I have a blue badge as I can’t walk well but the car park for cancer patients is closed off for no apparent reason. Some cars get in. It depended on the mood of the person in charge whether they would let me in.

I was reduced to tears on more than one occasion thinking I would miss my appointment. It’s not so bad at general outpatients as there is a blue badge car park and wheelchairs nearby which my husband could get and push me along. But the breast unit is hemmed in by building work with no blue badge parking close enough and no wheelchairs in sight. Small thing, big impact!

The other small niggle which had a big personal impact is the fact you never have bariatric gowns. I had to request one for surgery and got it but my diagnosis scans were so embarrassing as no gown fitted me. It’s my worst memory of the whole experience, having to tell the male health care assistant at CT scan that no, I can’t pop on that gown as my arms won’t fit in it, and have him shrug and say well that’s all there is. And having to sit in the open, naked to the waist with the gown just laid over me, terrified I would reveal all to the other patients when I got up to follow the nurse into scan room.

Hundreds of thousands of pounds worth of medical tech but can’t keep a couple of £12 plus size gowns onsite. Giving larger ladies a wee bit of dignity doesn’t cost much - I shouldn’t depend on a good health care worker realising the issue and letting me stay clothed, unlike the one unpleasant fellow that I got. Interestingly, that was at the general CT scan place, not the breast clinic. Maybe more dignity training needed there? It’s busier, more crowded so more important.

But overall, I have nothing but praise and gratitude to all at the Breast Cancer Centre.

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Responses

Response from Geraldine Marsh, Associate Nurse Director, Western General Hospital, NHS Lothian 4 years ago
We are preparing to make a change
Geraldine Marsh
Associate Nurse Director, Western General Hospital,
NHS Lothian
Submitted on 23/08/2020 at 21:19
Published on Care Opinion on 24/08/2020 at 13:45


Dear GracemountGal,

Thank you for sharing your experience of care at the Western General, especially at such a difficult time for you. I am pleased that Dr McNarry and the Nursing staff in the breast unit were able to put you at ease and I will pass on your thanks to them.

I am so sorry that you had difficulty parking near the Breast Unit, and can imagine the additional stress this would have caused you, you will be aware there is a lot of construction work currently being carried out around the Cancer Centre to improve the infrastructure of the building to enhance the facilities for our patients. Unfortunately this work has meant the loss of a number of parking spaces on site, however priority is given to patients attending appointments, I apologise that you have found the parking attendants less than helpful, I have shared this post with head of facilities who will reiterate to the parking attendants the importance of allowing patients access to on site parking.

I am sorry to hear of the difficulties you experienced in sourcing a hospital gown big enough, and can appreciate the additional stress this will have caused you. I have arranged with our facilities staff for the purchase of additional extra large patients gowns and we will ensure that the scanning department has a supply of gowns for patients who require them.

Once again I would like to thank you for taking the time to share your experiences and wish well for the remainder of your treatment

Best Wishes

Geraldine

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Update posted by GracemountGal (a service user)

Thank you for this response

Please also thank Mr El Nageh. He was so kind and attentive to me.

Re parking I remember one very helpful parking chap called James. He was lovely.

Response from Geraldine Marsh, Associate Nurse Director, Western General Hospital, NHS Lothian 4 years ago
We have made a change
Geraldine Marsh
Associate Nurse Director, Western General Hospital,
NHS Lothian
Submitted on 01/10/2020 at 11:41
Published on Care Opinion at 16:43


Dear GracemountGal,

I hope you are recovering well, following your operation. I have passed on your thanks to Mr El Nageh and James the care park attendant. I want to up date you on the change we have made as a result of your story.

I remember a patient once told me that when you are in hospital you leave your dignity at home, that sadden me at the time as it should not be the case. Being a lady who is not exactly a size 8 myself I can only imagine how embarrassed you must have felt being stripped of your dignity due to the lack of a gown to fit you. I am pleased to tell you that a supply of extra large gowns arrived on site yesterday and we have made arrangements for these to be stored centrally to allow access for every ward and department 24/7. All staff have been informed how to access these.

Thank you for sharing your story which has allowed us to make this change, It is often the simplest things that are overlooked that have the biggest impact

I wish you well and stay safe

Geraldine

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