"ADHD referral after private diagnosis"
Posted by GlasgowPatient2 (as ),
After many years of wondering I finally went for a private ADHD diagnosis in Mar of 2020. For someone with ADHD often getting the focus and motivation to pursue this can be the first stumbling block and then the lengthy waiting times. I was lucky enough to be able to fund this myself using limited resources available.
My NHS GP could not accept shared care without NHS confirmation and put me forward to riverside CMHT in Glasgow for review - So in the midst of a pandemic and feeling myself rapidly deteriorating I pursued private treatment which is costly and difficult as NHS can't advise.
After 4 months - it is now July 2020 I phoned to understand where my referral was to be told I had been rejected back in April 2020 and my GP would need to re-refer. I phoned my GP who stated very clearly there last communication was that I was on a waiting list. I phoned riverside, it appear there was a mix-up and the confirmation letter did say I was on list but the review meeting held had said I would not be seen.
A call back from Riverside today confirmed that I was not accepted for an appointment , that instead they had decided to advise my GP on treatment in April but that indeed wrong letter was sent but now I was back on the waiting list to be seen for ADHD review again when ADHD appointments started to open up.
Meanwhile I have had one trip to hospital after severe chest pain, a 4 day wait time for a response from private service on what to do with medication and 4 phone calls.
I have now asked if someone can explain why in April it was decided I would not be seen but they would advise my GP on treatment protocols but now in July I am back on waiting list to be seen by another consultant.
I appreciate the COVID pandemic is one of the most stressful situations we have faced and while everyone I have spoken to has been pleasant and trying their best but there are clear issues here around private and shared care for ADHD which are making things unnecessarily challenging and increasing workload for everyone involved.
I am grateful for the help I have gotten from my GPs and thankful for the nhs but is it any wonder that people don't come forward for ADHD review ? or that they try to go private if they can afford. It's even harder to accept this as by now I have already accrued quite a bill for the NHS with hospital visits and GP calls not to mention the 100 quid a month I have had to find since March to fund medication which has changed my life , I am sure if I had asked for anything else - antidepressants, anxiety meds, beta blockers I may have gotten them given my history! but the one thing that has already made a huge difference I can't get. Now faced with coming off medication as I can no longer afford to fund, worried what withdrawal my trigger? Severe depression? who knows not me.
I wish I could have emailed this to someone but I couldn't find any email addresses - again for someone with ADHD - executive functioning . auditory processing deficits on phonecalls it can be very helpful to see things written