I moved to Cornwall using an insulin pump with NHS funding initiated by another CCG area. I was given no choice of where I could be treated but was told I could only attend the Royal Cornwall Hospital, RCHT (Treliske), for an insulin pump clinic. Here I would have to be reviewed in order to continue receiving NHS funding for my treatment, which also at Treliske unusually includes a compulsory "patient contract".
What followed was a string of appointments issued then cancelled by the hospital within a few weeks of each being issued, this continued for over 6 months. In the mean time, as I had not received one appointment that the hospital would keep, my life saving medical supplies were running out. Various local NHS medical staff and myself attempted to speak with specialist staff there for approx 10 weeks, leaving messages, sending emails and formal letters, but no-one at Treliske helped, they did not communicate with either me as a patient, my GP's or any community based NHS staff. At this point I gave in and after much NHS fighting I managed to organize myself an appointment in Devon. It appears to me that the adult insulin pump clinic at Treliske operates to block adult patients from accessing insulin pump therapy. I think they should feel ashamed at how this hospital treated me as an adult type 1 diabetic patient on insulin pumps, and I believe they really need to change their attitude, be retrained or should be closed down. I had contacted complaints team, but they didn't get back to me. The pump team clearly knew that this problem existed but did not act on it. It's good to see a now publicly available RCHT adult insulin pump service pathway document, but sadly it doesn't include any information on service accessibility or had any patient input, lots of patients being made to jump through hoops but no commitment or accountability from clinical staff or managers - if RCHT would like some help with this please contact me. Overall my experience conclusion in attempting to receive pump therapy at RCHT is I will avoid using this hospital at all costs in future.
"Treliske adult insulin pump therapy"
About: Royal Cornwall Hospital (Treliske) / Diabetic medicine Royal Cornwall Hospital (Treliske) Diabetic medicine TR1 3LJ
Posted by Johnson100 (as ),
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Update posted by Johnson100 (the patient) 5 years ago