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"Availability of insulin pens"

About: Crosshouse Hospital / Ayrshire Doctor on Call (ADOC) University Hospital Ayr / Accident & Emergency University Hospital Ayr / Endocrinology and Diabetes

(as a parent/guardian),

My daughter is Type 1 Diabetic and manages her condition by using a pump.  Unfortunately one evening approx 8pm her pump stopped working.  She immediately reported this to the manufacturer.  She has been on the pump since Aug 19. She immediately went to the fridge to get check her insulin and to her horror discovered that her fast acting insulin was out of date.  Though the background insulin was OK.  She was devastated.  A type 1 cannot be without insulin.  Her sugars were 13 already.  She was upset and I went over to her house and I phoned ADOC and asked if we could see someone to get this sorted out.  She obviously needed an insulin pen with fast acting insulin asap please. 8.30pm.  One hour later we phoned back, her sugars were slightly higher.  The call handler passed the call to a nurse.  Yes she could see the urgency.  A GP would look into it but didn't think much could be done.  My daughter was becoming distressed now.  She knows what happens if her sugars spike and she does not have insulin.  She can become very ill.  So we wait 30 mins and call back and were assured a GP would call and let us know where to go for insulin but most likely Ayr hospital.  By this time my daughter is agitated.  Now stress is not good.  So I've decided best idea is to get in the car and drive to Ayr Hospital as we need to do something.  So we start making our way there.  Half way there finally an ADOC Dr phones.  Unfortunately insulin is only available in vial form!  Insulin pens are not available.  Is this a joke!  In the whole of Ayrshire & Arran NHS fast acting insulin is not available for Type 1 Diabetics to take home.  They can have it administered at the hospital via syringe or have it as an in patient!  That is what I am being told over the phone!  Appalling!  I didn't know what to do, she was in a dreadful state.  Apologies from a Dr are of little use.  I had been assured by Consultants that this sort of thing could never happen again.  My daughter was distressed beyond belief.  The hospital was willing to give her a dose of insulin and then send her home with nothing.  Didn't matter to them if her sugars spiked through the night - as they can for any reason.  So we arrive at ED at 12.40am to met with usual 20 min wait.  We spoke to an unhelpful nurse - who did not understand why I was appalled at no insulin pen available.  Another 30 min to see a Dr.  However, then like magic we met a very helpful Dr who amazingly managed to find an insulin pen and put fast acting insulin in it!  Now why on earth had we to go through all that worry get me  and stress and wait for 5 1/2 hours.  My daughter in a dreadful state.  Don't  get me wrong I was absolutely delighted and eternally grateful to the Dr at ED - the only guy who helped us.  I just don't understand why that couldn't have been done hours before.  Or why insulin pens are not readily available for Type 1 diabetics?  It's an absolute disgrace.  My daughter can't live without insulin. 

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