"Story about my dad,had kidney cancer stage 4"

About: Lincoln County Hospital / Oncology

(as a relative),

When we got the diagnosis for my dad, unfortunately he had kidney cancer stage 4, with 2 metastazes, one on the spine, one in his lung.

The haematology doctor straight away put my dad in an oncology ward, and said if you will come for appointments that will be very long, and the doctors put him in a bed and not let him wake up, sit down, using toilet, they would like to safe a spine, like they told and after 4 days they did 5 fractions radiotherapy

In between dad stopped feeling his legs and getting paralyzed, to hospital he came on his legs with his own car, together with me(daughter) without numbness in his legs. and because of good help after few days getting paralyzed.

then we were waiting for biopsy from kidney, after 1, 5 week they told us it is definitely kidney cancer stage 4, and consultants said, it was too late for surgery, they would plan another treatment, and every day I just heard promises to find a treatment for kidney to stop tumour spreading more metastases very quick.

I was in hospital every day, speaking with the consultants, our oncology doctor we saw just twice in our 6 weeks in hospital. First time in first week, then after 1 month when I said that we would like to change doctor oncologist and will be complaining because nobody had told us a plan about kidney treatment, they last it longer they doesn't want to do nothing because stage 4.

After 2 days when I said I will be complaining, an oncologist brought us to our doctor and we finally sign for targeted therapy for kidney, I asked for that not they gave us a plan, after few days of my dad being on pazonib tablet treatment, my dad was strong enough just paralyzed and optimistically ready for treatment.

Then consultant again came up with some reasons not to start treatment, dad not speaking english and they said their translation line doesn't work and we need to wait, but up till then I had been translating and even when we signed paperwork for targeted therapy,

then after few days his breathing became worse and he was sweating too much, and consultants said they will be doing lungs scan. After results they said nothing changed, and he probably got flu or pneumonia and they would start to give him antibiotics. After one week my dad asked me to take him home because he was getting worse in hospital not better and when I asked doctors can I take him home they told me the truth. That he had a lot of metastases in both lungs and they cant to do anything, it was too late, and sent him home for a palliative care...

It was the worst experience in our life, if I had known that Lincoln hospital was like this I would have never let my dad stay in there. For good life survival it is good when you find good oncology group, and even with stage 4, but it is definitely not Lincoln hospital, unfortunately for us it was too late change hospital, my dad passed away after 10 days at home.

I just sorry what I didn't start formal complaining every day when we was in hospital maybe my dad will be living a bit longer, he just was 52 years old.

Responses

Response from United Lincolnshire Hospitals NHS Trust 8 months ago
Submitted on 12/03/2020 at 13:37
Published on Care Opinion at 13:37


Hi Anida

We are sorry to read your concerns regarding your father's care. In order for me to investigate the issues you have raised, we would request that you contact our PALS Department via 01522 707071 or pals@ulh.nhs.uk in the first instance and quote CO745509.

Regards

Vicky Medlock, Clinical Services Manager

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