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"22 month wait for gallbladder operation (still waiting)"

About: Queen Elizabeth Hospital / General surgery University Hospital Lewisham / Gastroenterology

(as a service user),

In April 2018 I developed very unpleasant and persistent nausea. After a series of blood tests it was revealed in August that I had Hepatitis C. I assumed that this was causing the nausea.

I couldn't get an appointment to see the specialist at the Gastroenterology Unit till December: treatment for the Hepatitis would start in the New Year. I felt very relieved. But some blood test results were lost and I didn't start the course until March. A routine blood test as part of the Hepatitis treatment revealed gallstones.

All went well with the course, until two months later I told the nurse (who up to then had been great) that the nausea was still troubling me. They told me that this was a completely separate issue. I asked for it to be looked at, but was discharged back to my GP.

Another two week wait, more blood tests; In August my GP referred me back to the Gastro unit urgently for the gallstones to be looked at. They were astonished I had been discharged. I wasn't  given an appointment until December. During this time my nausea was getting slowly worse until in November I had horrible sickness and couldn't get out of bed.

The GP sent me straight to A&E as an erupting gallstone can be very serious, even lethal. The staff on Juniper Ward were great, until four days later the surgical junior who discharged me  told me I needed an urgent endoscopy. They tried to be helpful but didn't seem clear as to the date. They finally promised I was booked in for a Tuesday two weeks later.  By the Monday afternoon I had not heard a word and had to go back to the ward and stand there, interrupting people, which I didn't like doing, to find out what was going on. It turned out that the specialist was on holiday that week, so why I was led to believe I would be treated then I don't know.

When I was booked in two weeks after that, the surgeon couldn't access my gallbladder because of my hernia. I don't blame anyone for that.

My notes were handed to Queen Elizabeth Hospital where a full surgical op was booked in for early February this year. This was cancelled. I'm now in position where I get sick very easily, (I've been off work this week with the nausea), not knowing whether I should check into A & E, not knowing how much longer I have to wait. It's very worrying and upsetting and I can't make any plans. I feel my concerns about the nausea were ignored. Although I of course understood that treating the Hep C was a priority nobody seemed interested in what my own priorities were. I have been given no detailed advice on diet. This has been going on for nearly two years. To say I'm fed up is an understatement. 

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Responses

Response from University Hospital Lewisham 4 years ago
University Hospital Lewisham
Submitted on 03/03/2020 at 14:28
Published on nhs.uk on 04/03/2020 at 11:00


Thank you for your comments, we are sorry your experience has been so negative.

All feedback is extremely important to us and gives us an opportunity to improve our service, if you would like to discuss this further please contact our PALS department on pals.lewisham@nhs.net

Kind regards

Patient Experience Team

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