This is Care Opinion [siteRegion]. Did you want Care Opinion [usersRegionBasedOnIP]?

"The staff were my heroes"

About: Churchill Hospital / Clinical haematology

(as the patient),

In January 2014 I was diagnosed with stage 3 non-Hodgkin Follicular Lymphoma, 

6 years ago, almost to the day. It was, without doubt, the most terrifying time of my life. My cousin in Canada had been diagnosed with exactly the same, just 2 months earlier, which is why, when I discovered lumps around my left clavicle, just before that Christmas, I suddenly knew what my symptoms over the previous 2 years had meant.

We agonized over Christmas, waiting for answers. The surgeon who had removed my lymph node for diagnosis, very kindly and empathetically rang me one evening with the result, as I had implored him to do, which reduced the waiting at least. 

At every stage of treatment, through bone marrow biopsy, 6 months of chemo, a couple of infections, and 2 years of follow up Rituximab support, the staff at the Churchill, without exception, were my heroes. Nothing was too much trouble, and I felt supported and informed all the way, and was never made to feel my questions were stupid.

The chemo nurses on the haematology ward are so lovely, and empathetic - just special, caring people, who seemed to know my name, and remember things about me, making it feel like a gentle, comfortable oasis, in the harsh desert my life temporarily became.

Since I was thankfully declared in complete remission, I have had regular check ups at the hospital, having now progressed to 6 monthly telephone appointments. I had been very worried about being 'cast adrift' once remission was achieved, but this has not happened, and I still feel I could contact the team, via the specialist nurses, if I ever become concerned again.

I even visited Maggie's drop in centre, several years after remission was declared, for a few sessions of counselling, to just help put a few ghosts to rest. I was welcomed and cared for so generously, by kind, understanding people who I cannot praise highly enough.

I still dread the return of the condition, but feel much more secure now, knowing this wonderful team would have my back.

Do you have a similar story to tell? Tell your story & make a difference ››

Responses

Response from Catriona Gilmour Hamilton, Haematology Quality Manager: patient experience and engagement, Haematology, Oxford University Hospitals NHS Trust 4 years ago
Catriona Gilmour Hamilton
Haematology Quality Manager: patient experience and engagement, Haematology,
Oxford University Hospitals NHS Trust
Submitted on 08/01/2020 at 12:54
Published on Care Opinion at 14:35


picture of Catriona Gilmour Hamilton

Dear 'rainewater,'

Thank you so much for sharing such a detailed and moving account of your care here at the Churchill.

I am so pleased to hear that you are in remission, and that you have faith in the team should you ever need their support in the future. I am also glad to learn that delays were kept to a minimum at the time of your diagnosis, and that you were happy with the information you were given and the communications you had with the team. These are issues that we know really make a difference to quality of care - as you know, it's not just about getting effective treatment, but about how you are made to feel cared for and supported.

I will take great pleasure in sharing your story with my colleagues so that they know what a great job they are doing, and so that they are reminded of how much their efforts mean to the people we look after. I will also share your comments with the team at Maggie's.

With very best wishes, and thanks again for taking the time to tell your story.

Catriona

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful
Opinions
Next Response j
Previous Response k