"The Lymphoma Clinic"

About: Churchill Hospital / Clinical haematology

(as the patient),

I was diagnosed with a non-Hodgkin lymphoma nearly 2 years ago and have been on 'watch and wait' since then. 

 I have found the Consultants very patient and clear in their explanations at appointments. 

 Earlier this year test results indicated that there might be a problem with my kidneys and I was really pleased with how quickly scans etc were organised.  

Although I haven't started treatment for the cancer as yet, I do from time to time have questions and every time I have e-mailed them, the two Clinical Nurse Specialists have, without fail, got straight back to me with an answer and they always stress that patients can contact them with any question or concern they may have.  Knowing that there is this level of support is very reassuring.  

I have also attended several of the Lymphoma Support Group sessions at the Maggie's Centre and have enjoyed some very interesting talks organised by the Clinical Nurse Specialists. The sessions are relaxed and informative and I feel that this is a good way to meet other patients and share experiences. 

I would say how bad car parking is but everyone already knows this!

Responses

Response from Dr Catriona Gilmour Hamilton, Lymphoma and CLL Research and Quality Co-ordinator, Oxford University Hospitals NHS foundation Trust Haematology Department

Dear Chantel,

Thank you so much for sharing your thoughts about the lymphoma clinic. It is great to hear that you have had good support from our team, and that you have had timely, clear and reassuring responses to your questions.

I work closely with our team of haematologists and clinical nurse specialists, and will share your comments with them today. Our doctors and nurses often don't hear what their patients think, so it is great to be able to let them know what a good job they are doing.

As regards the car parking, this is - as you say - something that most of our patients really struggle with. I am in the process of gathering all the evidence we get from patient feedback about car parking, and I hope that it is something that the Trust will attempt to prioritise in future. Sadly, this is something that will not have a quick fix, but at least we can capture what people are saying and make sure the Executive knows just how stressful it is for our patients. Watch this space!

With thanks again for sharing your thoughts.

Catriona

Lymphoid Quality and Engagement Co-ordinator

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