"CF annual review process"

About: Royal Hospital for Sick Children (Yorkhill) / Respiratory Medicine

(as a service user),

My daughter attends RHC   CF team in Glasgow. We had her annual review which normally can take all day and is fairly exhausting for her and also for us as there is a lot of worry   they comes with these appointments. I just wanted to say how fantastic this years experience was compared to previous years.

The team have clearly listened to feedback from patients and parents. From the moment we arrived in X-ray we were greeted and taken to a room. We were regularly informed of what was going to happen next and the staff kept us segregated from any other patients which is essential for CF patients. My daughter is 14 and they explained everything to her, maintaining her dignity throughout examinations. I can’t thank the team in X-ray, pulmonary function lab, the physios ( and assistants), phlebotomists and dieticians enough. I’m sorry I didn’t get everyone’s names as I do normally find this process quite stressful but for all the team in October you were amazing!

Everyone greeted us with a smile, everyone asked us how we were doing, everyone asked my daughter if she had had some food knowing that she had been starved for her early morning US. The difference this year was fantastic and I can honestly say it is the first time we have left feeling incredibly positive and very much listened to. Well done team, every one of you is   an essential element in our patient journey   and   your smiles and positivity brightened up what is normally a tough day for us 

Responses

Response from Di King, Lead Nurse, Paediatrics, Royal Hospital for Children

Dear parent cf

Many thanks for your feedback regarding the CF annual review. I am the Lead Nurse for the CF team and your feedback is greatly appreciated. The annual review with so many members of staff to see can be extremely exhausting. I am delighted that your daughter had an improvement in her annual review from last year and the feedback that you had given has been listened to. This has resulted in a more positive experience for your daughter and yourself this year. It is extremely important that young people are given clear information and treated with dignity and respect when attending hospital.

I have shared your feedback with the CF Team. They are delighted that your daughter and yourself had a positive experience in comparison to previous visits.

I hope your daughter continues to keep well and that your future visits continues to result an a positive experience for your daughter and yourself.

Again many thanks for your feedback.

Kind regards

Diane

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