"Absolutely no communication at all"

I am appalled at the overall service I have received. In summary since this unorganised chaotic mess that is the transition from Circle to NUH with regard to the treatment centre, I have been treated like I am nothing. There has been absolutely no communication at all re the transition and what that actually means for me.

They (NUH) have set up a hot line for patients’ queries - this is not a hot line it’s just the treatment centre number and when you ring this no staff member has any clue about your treatment or any answers for you at all. Now I have had my day case surgery cancelled three times with only 1 days notice. This time I’ve been told it’s because the wrong equipment has been delivered. How can the equipment be wrong three times? This is the best bit - if the equipment was being bought from somewhere overseas then I could understand a delay. But it’s not - I was told today that it’s being delivered from a hospital a short drive away from the treatment centre. How a trust / service can be so unorganised is actually beyond me.

My surgery has not been rescheduled at all, I’ve been told no one knows anything including when my surgery will be or when the equipment will be here. I was told there was no managers in at the centre as they are all on holiday. I’ve made two formal complaints through PALS but actually things are worse than before with regard to my treatment. I can’t move on with my life until I’ve had this surgery. I'm stuck on horrific medication that is needed prior to the surgery that has completely intolerable side effects so I can’t live properly. I can't sleep, I can’t function because of the side effects and now I’m being told I’m being forced to go on this medication for at least a month longer and suffer than I consented to because someone can’t organise what equipment they need. I am absolutely fed up of seeing the hash tag #welistenwecare re: NUH when the truth is it seems like they don’t listen nor do they care. Why is no one talking about the fact NUH have professed to have taken months to organise this transfer, and have assured patients that their care will not be affected, when it is affected? It’s the worst service I have ever known and despite the suggestion on social media that things are going smoothly, it is far from the truth in my experience. And yet the people who suffer are the patients, not the people making the decisions that prolong the suffering of others. You should be ashamed.