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"A massive waiting list"

About: Queen Margaret Hospital / Adult mental health

(as a service user),

I am currently no doubt on a massive waiting list for Autism Assessment and I want to highlight the effect this is having on my life.

Last year was the most horrific of my entire life. I lost both my parents in dreadful circumstances both of which generated complaints, one of which is still ongoing, as is the stress that watching the circumstances of these cases.

My son was diagnosed with Autism at the end of this same year. 

I recently had to attend a health assessment in Edinburgh and am still awaiting the outcome. I have suffered from depression most of my life. I also have OCD and PTSD. Most of my current PTSD issues relate to watching my parents deaths play out and the awful circumstances of both.

I am particularly struggling right now and my finances are getting in a mess. Although I understand that diagnosis would not be of any financial benefit I really need assessment for many other reasons. The Housing Association that I was with made my life hell and right now the local council also say that I owe them money.

When I am under excessive pressure like I am right now I find it extremely difficult to concentrate. It is almost like a form of mental blindness due to the complete lack of focus and fog in your mind.

I ask for help all the time but just like my assessment I get added to a list where I’m likely to get an appt on 12th of never. Meantime I’m scared that because no-one understands why I react in certain ways I’m more likely to get persecuted than protected. 

I have never had to deal with as much stress and grief as has been thrown at me over the last three years and it does affect how I deal with other issues.

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Responses

Response from Louise Ewing, Clinical Service Manager, Older Adult Services, Health & Social Care Partnership Fife Wide 4 years ago
Louise Ewing
Clinical Service Manager, Older Adult Services,
Health & Social Care Partnership Fife Wide
Submitted on 01/08/2019 at 14:09
Published on Care Opinion at 15:04


picture of Louise Ewing

Dear Eleanorr

Thank you for taking the time to share your eperience. I was very sorry to hear of the dreadful events you have had to deal with lately on top of your existing pressures. It sounds very complex; and on that basis I wonder if it would be more helpful to get some one to speak to you directly? If you feel able to discuss these issues further then please let me know and I will arrange for some one to make contact with you.

Regards

Louise Ewing

Clinical Service MAnager

Older Adult Mental Health Service

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Update posted by Eleanorr (a service user)

Thank you Louise. I really need to speak to someone. I have just received the DWP decision which means I have to look for work. Last week NHS was telling me of the importance to take time for myself but when? Fife Council were going to send a Sheriffs Officer to my door last week. I’ve struggled with work all my life and if pressured to look for work it’s going to make an impossible situation so much worse. I just feel that if I can get the Assessment it would help when dealing with all these organisations who seem determined to make my life hell and can’t understand why I respond the way I do.

Response from Louise Ewing, Clinical Service Manager, Older Adult Services, Health & Social Care Partnership Fife Wide 4 years ago
Louise Ewing
Clinical Service Manager, Older Adult Services,
Health & Social Care Partnership Fife Wide
Submitted on 06/08/2019 at 14:13
Published on Care Opinion at 14:13


picture of Louise Ewing

Dear Eleanorr

Thank you for getting back in touch. In the first instance give me a ring to discuss. My number is 01334 696087. If I am not immediately available please leave a contact number with my secretary and I will then contact you directly.

Regards

Louise

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