"Disgusting excuse for a doctor"

About: The Royal Victoria Infirmary / Neurology

I had an appointment with the neurologist doctor some time ago. She was extremely rude and would not let me speak. She had already made a diagnosis from reading my notes before my appointment. When I tried to ask a question about my therapy she told me “we are not talking about this” she recommended physio therapy and to come of all pain relief. Due to me telling her I sometimes stop breathing during the day time while awake she told me I may have sleep apnea. So I left the appointment in disbelief and she had made the pain I had been suffering from seem like it was all in my head. Myself and partner did not know what to think. A few months pass and I finally had my physio therapy appointment to which I couldn’t tell the therapist why I was there because the neurologist did not give me a diagnosis. It then took until my second physio appointment for the physiotherapist to tell me I had functional neurological disorder. Why the neurologist kept this information secret from me I do not know. So eventually I get a discharge letter from my physio saying they are happy I have started the ‘Newcastle active health programme’ that I had been referred to. I have not started or ever received anything about this programme I was apparently referred to. So another mistake was made due to the neurologists negligence. I think it was around this time I made a formal complaint to the PALS to which I got a pointless apology letter from someone that wasn’t even the neurologist who failed to do her job correctly. A year later I eventually receive an appointment with the sleep services due to me not breathing while awake... the sleep specialist told me I do not have sleep apnea. Which I knew due to only stopping breathing while awake. He then proceeded to show me the neurologists book on Amazon that could help me with my sleep. This was a complete and utter waste of two years of my life. I am still in a lot of pain daily, I still struggle with the same symptoms and I have had no progression and it is all down to the disgusting way the neurologist diagnosed me without listening to my issues correctly. If I ever have to see a neurologist again I will make sure I request that I am not seen by the first one I saw. Doctors and specialists should listen to their patients and not make them feel the way that neurologist made me feel.

Story from nhs.uk


Response from The Royal Victoria Infirmary 15 months ago
The Royal Victoria Infirmary
Submitted on 24/06/2019 at 09:23
Published on nhs.uk at 10:06

We are sorry for your recent experience within the Neurosciences department and would be very interested in exploring this further with you. If you would like to discuss this please contact our Patient Relations Department on 0191 2231382 or e-mail patient.relations@nuth.nhs.uk.

Thank you for taking the time to leave your feedback regarding your care at Newcastle Hospitals. We have forwarded to the directorate concerned, who will address the issues with the staff involved and share with the wider team

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