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"I just want someone to believe my pain"

About: General practices in Ayrshire & Arran Golden Jubilee National Hospital / Cardiac Surgery

(as the patient),

I had a Quadruple bypass operation last year following my second heart attack a month before.  My operation was carried out at the Jubilee hospital and it seemed to be successful until I returned home and around a week later I started experiencing severe pain.  I had been discharged from the hospital with paracetamol which did nothing for the pain, so I went to my GP who prescribed me Co-Codamol 30/500 which again did nothing and then Tramadol which had no affect also.  Eventually, and with much reluctance, my GP prescribed me Shortec 5mg (Morphine) which seemed to help for a bit but then stopped working and the pain was getting worse.  I have been to A&E on a few occasions and they didn't seem interested so I went back to GP and I am now taking Longtec 10mg 1 in the morning and 1 at night as well as shortec in between.

During this whole experience I feel that no one actually believes my level of pain and obviously thinks I am making this up  The last time I went to my GP they said that they had never heard of this type of pain following this operation which made me feel very angry as they clearly do not understand or believe me.

I have been referred to the pain management clinic at Crosshouse Hospital but that might take another 6 weeks and I am at the end of my tether with this as it is affecting everything in my life including my relationship with my husband.

I am not part of the opiate crisis, I just want someone to believe my pain and get it under control so I get get on with my life.

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Responses

Response from Eunice Goodwin, Patient Feedback Manager for NHS Ayrshire and Arran, Quality Improvement and Governance Team, NHS Ayrshire and Arran 6 years ago
Eunice Goodwin
Patient Feedback Manager for NHS Ayrshire and Arran, Quality Improvement and Governance Team,
NHS Ayrshire and Arran

I respond initially to most of the posts and ensure they are passed to the appropriate team whether they are compliments, observations or grumbles. It is important to make sure all issues are addressed and I try to encourage that to happen for all the posts as required.

Submitted on 09/04/2019 at 15:48
Published on Care Opinion at 16:39


picture of Eunice Goodwin

Dear Paulinexxxx,

I am so sorry, your story is such a distressing one. Constant pain really wears you down. Into the bargain, if you feel that you are not being taken seriously or believed, I suspect it must seriously impact on your health and wellbeing.

I might be opening Pandora's box here, but I wonder if the cardiac operation is a red herring and that your pain may be coming from some other problem.

I wonder if it is worth returning to your GP (a different one - new eyes) and giving them as full a story as possible, just in case this is not connected to the surgery at all. Get a full 'MOT' perhaps?

I am sorry this may not seem overly helpful but I do wonder if it could help you.

I also really hope you get this resolved and can move on, pain free or with a way to coping that lets you live your life again.

Best wishes,

Eunice

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful
Response from Paula McPhail, Feedback and Legal Co-ordinator, Clinical Governance, NHS Golden Jubilee 6 years ago
Paula McPhail
Feedback and Legal Co-ordinator, Clinical Governance,
NHS Golden Jubilee
Submitted on 12/04/2019 at 12:34
Published on Care Opinion at 15:14


Dear Paulinexxxx

Thank you for your post on Care Opinion. I am sorry to hear of the pain you are still experiencing. I see from your post that you have sought advice from your GP and I am sorry that this did not appear to go well. I am pleased to read that you have been referred to the Pain Management clinic at Crosshouse Hospital, as this would be the most appropriate route for you.

I am unsure at the Golden Jubilee if there is anything we can do to help, however if you feel there is, please contact me on 0141 951 5951, as I would be happy to help.

Regards

Paula

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful

Update posted by Paulinexxxx (the patient)

Thanks I have now got an appointment for Biggart hospital in Prestwick for next month at pain clinic. I hope that they will be able to help with my pain and also hope they will be able to tell me where I can get help for items that will help me in mesh home.

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