"Ongoing investigations for severe back pain"

About: Queen Elizabeth University Hospital Glasgow / Xrays and Scans University Hospital Hairmyres / Neurology

(as the patient),

I have suffered for the past 8 weeks with severe pain in my lower back, which was also accompanied by loss of sensations down both legs, bowel & bladder incontinence and severe weakness in all limbs. I was referred from Hairmyres hospital to the QEUH where I was given an MRI scan. I was told there was small swelling but nothing that required immediate surgery. Following this, I was kept in for 3 days with no further communication of what may be causing my symptoms, or how I could recover. Staff were incredibly rude, very dismissive of my pain, and all clearly lacked communication within their team. One nurse suggested some morphine for breakthrough pain as I remained in agony on day 3, however the next nurse came and told me I couldn't have morphine as I was supposed to be going home. I was later discharged home, barely able to walk, unable to dress myself, unaware of what was wrong with me, and in severe pain. 

I was informed I would require intense physiotherapy to recover, and would be referred to neurology for further investigations and I would get a letter about a follow up MRI scan. 

My first physiotherapy appointment was 5 weeks post discharge. My GP has recently referred me to neurology as this was apparently never done in the hospital. And I have never received a letter about an MRI and my GP now says this was never requested. 

I remain in severe pain. I have intermittent numbness now in all 4 limbs. I have severe weakness in both legs. Physiotherapy were very concerned that my reflexes were very poor and my movement in extremely restricted. I am 29 years old and have two young children. I am unable to work, unable to drive, unable to carry out basic tasks. I have received my appointment letter for neurology this week, and the appointment is another 5 weeks away. 

I understand that there is going to be a wait for these important referrals, but I feel I was failed by the hospital as I've already been waiting 6 weeks for this appointment. I cannot imagine waiting another month to be seen by a specialist when I'm in this much constant agony. Nobody has given me an idea of what might be wrong with me and therefore the stress of this whole event is affecting my whole family. 

Responses

Response from Nicole McInally, Patient Experience and Public Involvement Manager, Patient Experience and Public Involvement Team, NHS Greater Glasgow and Clyde 12 months ago
Nicole McInally
Patient Experience and Public Involvement Manager, Patient Experience and Public Involvement Team,
NHS Greater Glasgow and Clyde
Submitted on 18/03/2019 at 15:45
Published on Care Opinion on 19/03/2019 at 08:54


picture of Nicole McInally

Dear Rydowils

I am sorry that you are having such a difficult time and the impact that this is having on you and your family.

It is very disappointing to read about your experience, and this is certainly not the standard of care and compassion that we strive to deliver - all our patients should be treated with dignity and respect. Please be assured that I will share your comments with the staff so that we can reflect and learn from your experience.

To be able to provide you with a more detailed response I would be grateful if you could please email me at Nicole.McInally@ggc.scot.nhs.uk with your personal details (e.g. your name and date of birth).

Thank you

Nicole

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Response from Christine Robertson, Service Support Manager, Neurology & Rheumatology, NHS Lanarkshire 12 months ago
Christine Robertson
Service Support Manager, Neurology & Rheumatology,
NHS Lanarkshire
Submitted on 22/03/2019 at 07:43
Published on Care Opinion at 10:15


Dear Rydowils

I am sorry to hear that your patient experience has not been to the standard you expected from us and that it is having such an impact upon your family life. This is certainly not the standard of care that we strive to deliver.

In order to help faciliate the planned investigations that you were advised would happen can you please email me at Christine.Robertson2@lanarkshire.scot.nhs.uk with your personal details and I can look into this for you.

All of your comments will be shared within the Neurology team in order that this can be reflected and learned from.

many thanks

Christine

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