"Not being listened to"

About: Aberdeen Royal Infirmary / Neurology (Brain, Spinal and Nerves)

(as the patient),

I have been suffering with an unknown neuro problem for years now, and very debilitating and since I seen mental health specialists in the past - as it was stated in my records - the way I was treated - although denied, it was "not due to mental health records, " - implicated severely on 1. the diagnosis and 2. treatment.

Therefore if you could in the future not neglect care or make assumptions of something being related to another thing completely different. 

I'm really trying to be constructive here however, due to so many years of frustration, coming back for needless tests/exams already repeated time and time again without looking at other causes instead, so as they can just say we did something for you kind of thing, really upset me then they sent me home with no progression. They hide things from you, they say they won't judge, well they did and that is not fair or the way you treat someone. The way I was not listened to properly, and had to be re referred to a psych (bad experience in the past as was forced to see one as a child and this person told NHS and now is on my files forever) instead as I was told they couldn't do more for me. I don't think that was the case, and I feel I was denied further tests, or being able to voice my opinion on my care of treatment, which on the first appointment I was reassured and told they would start with repeating these tests.  I did say I didn't think it was necessary as I knew they'd come back normal as did on last times, and wanted them to look further if they came back normal. Well that is not what happened certainly.   No one deserves to be treated like this. That is not the care of excellence NHS Grampian promised. You shouldn't just assume everything is mental health related just due to the fact that person has something on their records they saw a psych/counsellor.

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Responses

Response from Linda Oldroyd, Chief Nurse for Surgery, NHS Grampian

picture of Linda Oldroyd

Dear patient

I am very sorry to read of the ill-health you are suffering. From your post I can tell that you are very frustrated with the lack of progress in diagnosing your condition. This must be very worrying for you. I would strongly advise that you contact your GP to find out where you are with any onward hospital referrals. At least then you would know what is to happen next. It feels from your story that you feel that you have been left hanging. We would not want that for any patient.

I am sorry that you have been dissatisfied with your care.

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