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"Two recent experiences of dermatology"

About: Crosshouse Hospital / Dermatology

(as the patient),

Three years ago I attended the nurse led clinic at Crosshouse for a course of Isotretinoin for severe cystic acne which I have suffered from for around twenty two years. I was given a dose based on my weight and within a week I had very red, bloodshot and itchy eyes. The Isotretinoin was stopped with no discussion of reducing the dose or alternative treatment - it felt like the nurses weren't able to deal with anything other than prescribing a standard dosage and didn't seem to know about lesser known side effects. At the time I felt disappointed with the lack of support and inflexibility of the nurse led clinic but I was too concerned about my eyes to do anything about it. I had waited months for the treatment and was left with sore eyes, continuing acne flare ups and no support.

Several months later I visited a private dermatologist for advice and he suggested that a lower dose of Isotretinoin over a longer period may be better for me. Based on his observations of my skin and the length of time I have suffered from acne, he also recommended I be seen by a consultant in future rather than via the nurse led clinic. He wrote a letter to my GP advising them of this.

Earlier this year, I went to my GP with ongoing cystic acne and I was referred to a consultant at Crosshouse. Today after waiting around fifteen weeks for an appointment, I saw a consultant and was so upset with the way I was treated. The consultant didn't say hello or introduce themself and just started talking about my skin straight away. I explained that I had tried lots of antibiotics over the years and they tend to upset my stomach, and I felt they were more of a short-term solution. The consultant bluntly said there is no cure for acne and what did I want them to do if I didn't want antibiotics or Isotretinoin. I started to get upset as I am quite sensitive about my skin. The consultant then asked if I was on antidepressants. When I said no, I was asked if I normally get teary like that. I tried to explain that when you have been suffering with skin problems for over twenty years it can be quite upsetting. I couldn't believe the insensitivity. How can you become a consultant dermatologist without having an appreciation of the emotional impact skin complaints have on patients.

I said I wasn't against trying Isotretinoin again and mentioned the possibility of a lower dose. The consultant quite bluntly said that's what I was given before and when I disagreed, gestured at the letter from the private consultant to my GP. When I pointed out that the letter was a recommendation, not my previous dose, the consultant dismissively told me that I could still get side effects on a lower dose - very helpful! I was so disappointed with the way I was spoken to. I had waited so long for an appointment and was looking forward to getting some advice and suitable treatment. I wasn't expecting the consultant to ask me what I wanted them to do, not once but a couple of times. Surely that's their job! The consultant didn't touch my skin or show any interest in the history of my acne.

In the end I just agreed to the lower dose of Isotretinoin so that I could get out. The consultant then told me I would be seen by the nurses in future. When I queried what would happen if I had side effects again, I was just dismissed. Basically the nurse led clinic is my only option again, despite my GP requesting a consultant clinic. I appreciate acne is not a life threatening condition and is probably not high on a consultant's agenda but I expected to at least be treated with a bit of respect and offered some advice. I left the hospital in tears and am not sure that I will even bother with my treatment after my two recent experiences of dermatology at Crosshouse.

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Responses

Response from Sandra Hanlon, Ward 2E- Dermatology and Dermtology OP, Crosshouse Hospital, NHS Ayrshire and Arran 5 years ago
Sandra Hanlon
Ward 2E- Dermatology and Dermtology OP, Crosshouse Hospital,
NHS Ayrshire and Arran
Submitted on 25/09/2018 at 17:26
Published on Care Opinion on 26/09/2018 at 10:45


Dear Chrfi0214

I am shocked and saddened to hear about your experiences of attending the Dermatology Clinic as this is not in keeping with Ayrshire and Arrans caring, safe and respectful values so please accept my sincerest apologies.

I understand your frustration at waiting to be seen and disappointment at the lack of support and follow up when you had side effects and treatment was stopped.

You are completely right that acne is more than skin deep and has a huge impact both physically and mentally on peoples day-to-day life. You have tried a number of treatments without success and ran into side effects of extremely dry eyes previously with Isotretinoin but you may well tolerate the medication if given in a lower than usual dose and we can try to increase the dose more slowly, it means you will be taking the medication for a longer timescale but if the treatment works it will be worth it.

Please be re-assured that your feedback will be shared with staff as we want to provide patient centred care. I do not want anyone else to experience what you have gone through and wish to investigate the matter further as you have raised a number of issues, I would be grateful if you would be willing to contact me directly on 01563 827923 so I can get more details.

I hope you decide to give Isotretinoin another try and would encourage you to attend your appointment so that we can tailor the treatment to you as an individual.

Kind regards

Sandra Hanlon

Senior Charge Nurse

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