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"My dad in St Luke's Hospice"

About: Northwick Park Hospital St Lukes Hospice

(as a relative),

All the staff at St Luke's have been fantastic. My dad has been there for 7 weeks now, longer than we expected, the care he receives is amazing.

My parent's 60th wedding anniversary will be at the end of May, when my dad was taken to the hospice we were not sure if he would be here to  celebrate this landmark occasion. When the staff at Luke's heard about this they pulled out all the stops to put on a party for my parents to celebrate their anniversary early. they worked with our family to make it a special day, two days  before the party I just wondered if it would be possible to get someone to give a blessing, not really expecting anything at such short notice. However, the social worker at the hospice went off and next thing we knew was that a minister had been booked to give the blessing.  The cakes, the balloons, the banners all made the day special.

This is just an example of the lengths the staff go to in looking after not just the patients but also the families.  My  dad always went to a social club to mark St George's day, this year it was no exception. The nursing staff dressed him in such a way that they were able to hide the catheter tubes and pouch and minimise the tubes through his nose to his stomach so that he could be at the club with dignity.

The grounds at the hospice are beautiful, even  with his illness my dad has enjoyed being wheeled out, in his bed, to enjoy the peace of the gardens.

all visitors are looked after, my dad gets lots of visitors but all are offered a cup of tea when they visit. One other thing we don't need to worry about is  visiting over lunch time as we can always order a sandwich if we arrive at 11:00 and are staying till 1:00 or 2:00 - we don't have to stress about organising our own lunches as we can always but a sandwich at the hospice. It's little things like that which make the hospice so special.

My dad was transferred to the hospice following a stay at the Northwick Park hospital where he received great care from all the medical staff. The only niggles I have is that it was not made clear that when he left hospital to go to the hospice the IV drip he was on, which essentially provided all the nutrition as could not eat, would be removed. Also, the cancer was causing a blockage in his stomach which we were told was operable though risky. we did discuss the risks with the doctor and felt that we would like to go ahead with the operation if it meant he could go home. Without the operation it would be more difficult to look after him at home and he would need to go to a hospice. However, the decision to operate was overturned by two other doctors, I wish we'd  been able to discuss this and understand why. 

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Responses

Response from Lorraine Gilbert, Director of Patient Services , Patient Services, St Luke's Hospice (Harrow and Brent) 5 years ago
We are preparing to make a change
Lorraine Gilbert
Director of Patient Services , Patient Services,
St Luke's Hospice (Harrow and Brent)
Submitted on 29/05/2018 at 11:35
Published on Care Opinion at 11:40


picture of Lorraine Gilbert

Thank you for taking the time to share your experiences at the hospice

We were pleased to support your mum and dad to celebrate their 60th wedding anniversary

We were honoured to be part of your family celebrations and here at the hospice we welcome being able to support the celebrations of special occasions and are happy to accommodate changing dates to enable you to have the best possible day.

Our ethos at the hospice is care of patient and their families, we will endeavour to meet your wishes and we recognise that the little things mean a lot.

I have passed your thanks on to all of the staff.

I will discuss the issues you raised about decision making at Northwick Park with the consultant here at St Luke's and will respond to you via Care Opinion

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Response from Northwick Park Hospital 5 years ago
Northwick Park Hospital
Submitted on 29/05/2018 at 12:00
Published on nhs.uk at 13:06


Dear Sir/Madam

Thank you for leaving your feedback about your father and the care he is getting at the moment at St Luke's Hospice.

It is very heartening to hear that he is being looked after so well and the staff are going the extra mile with his dignity and care.

I am glad that your father received good care as well during his stay at Northwick Park Hospital.

I do of course note the couple of concerns that you have mentioned about his discharge and the decision to not go ahead with any surgery.

Should you at any point wish to discuss these in further detail with the team that were looking after your father then you can of course contact us and we would be happy to arrange this.

You can contact our PALS team at Northwick Park hospital in the first instance on 020 8869 5118 or via email at LNWH-tr.PALS@nhs.net

Thank you again for taking the time to leave your feedback and I wish your father all the best with the rest of his stay at the Hospice.

Kind regards

Peter Hare

Patient Liaison Manager

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Response from Lorraine Gilbert, Director of Patient Services , Patient Services, St Luke's Hospice (Harrow and Brent) 5 years ago
We are preparing to make a change
Lorraine Gilbert
Director of Patient Services , Patient Services,
St Luke's Hospice (Harrow and Brent)
Submitted on 29/05/2018 at 12:11
Published on Care Opinion at 16:08


picture of Lorraine Gilbert

Dear ariesrp76

I have discussed with Dr Zane consultant on the inpatient unit at the hospice the issues you raised above.

She wanted to thank you for your kind and honest words


With regards to how we would like to help you with the niggles you described, please can we offer you an opportunity to meet face to face with myself and Dr Zane at your convenience. Please can you make contact with me to arrange this.

Kind Regards

Lorraine

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