"Extended delays to treatment"

About: Manchester Royal Infirmary Trafford General Hospital Wythenshawe Hospital

(as the patient),

The procedure was booked in for January at MRI, then postponed until February. At the pre-op assessment, it was decided that I needed a sleep study done to rule out sleep apnoea. I duly had a sleep study done at MRI and my procedure was rebooked for June.

When I came for pre-op in June, I was told that the sleep study had a recommendation of further sleep tests – so why had my procedure been rebooked? Why had I not received any results from the initial sleep study? Why had I not been referred on for these tests?

I was also told I would need to see my GP to be referred for the next sleep tests – why? The hospital should have referred me directly.

I then had a fuller sleep study at Wythenshawe Hospital early in September, and the consultant there told me that he didn’t understand why I had been referred to him, as there was nothing unusual about the first preliminary study. So why was I referred here, delaying my procedure again?

After the sleep study, my procedure was rebooked for October at Trafford General. My letter from Trafford said I would get a pre-op phone call in the week before. Why was no pre-op assessment done?

When I spoke to the Dr this morning, he told me that the sleep study results were not in my notes. Why, over 6 weeks since the study, were there no results?

He also told me that, because of my BMI, the procedure could not be done at Trafford, even if I had my sleep results, and even with local anaesthetic rather than general. My BMI was known to the hospital – I should never have been booked at Trafford.

I understand that my procedure may not be a top priority one, but my quality of life is suffering. As well as having difficulty with sexual activity and urination, I have now three times had the stress of preparing for a procedure that has been canceled. The continued delays to my treatment have also left me suffering from depression and anxiety.

Also, I have had a lot of time off work for all these appointments – many times unnecessarily. My husband has also had to have time off today for no reason. To be clear, I do not get paid if I am not at work. These delays are costing me a lot of money that I cannot afford.

I need this procedure done AS SOON AS POSSIBLE. I would also appreciate some answers to my questions and some information on how you will improve things to ensure this does not happen to others.

Responses

Response from Patient Experience Team, Manchester University NHS Foundation Trust

Thank you for your feedback. We were sorry to learn that your experience was not as positive as we would hope at the Manchester University NHS Foundation Trust. It is important to us that comments are heard and seen as an opportunity provided to the service to make changes and improvements wherever possible.

We would like to apologise that your experience has been below the standard that we would hope to achieve. Patient safety is important to us and in order for your operation to go as smoothly as possible and ensure the best possible outcome all patients are assessed for the requirement of any pre-operative tests or investigations so that the anaesthetist and surgeon have all the information they require to ensure your surgery is safe to go ahead.

It is difficult to respond to your post fully due to the anonymity of the website and the lack of detailed information provided. We would like to discuss your concerns in more detail. Please contact Donna Egan, Clinical Effectiveness, Complaints and Quality Lead directly on 0161 701 0107 or alternatively please contact out Patient Advice and Liaison Service (PALS) on 0161 276 8686 or by e-mailing pals@cmft.nhs.uk quoting reference number PO17/0197.

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