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Care for my husband with locked-in syndrome

Posted By Anne Crosbie

"Care for my husband with locked-in syndrome"

About: Bromley Healthcare / Speech and language therapy for adults

(as a relative),

My husband has locked in syndrome, communication is very difficult. Keith from Bromley Speech and Language came to see Geoff. He put himself completely in the frame for making sure Geoff's needs were met. He gave us exercises for Geoff's facial muscles and followed up with a meeting with St Cecilias nursing home's management to ensure the exercises were carried out.

Geoff has an Eyegaze computer. Keith contacted the technical team to see how this could be utilised in the best way for Geoff. The team came several times and have worked very hard to make this device easier for Geoff to use.

Keith gave a talk to management and cares about Geoff's right to speech by using the Etran board. He helped with a demonstration and followed up with another visit.

Keith has been invaluable to Geoff's progress and in helping the people who care for Geoff understand that Geoff can communicate given the tools he has.

Thank god for people that care.

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Responses

Response from Julie Miller, Patient Experience Lead, Bromley Healthcare 6 years ago
Julie Miller
Patient Experience Lead,
Bromley Healthcare

Submitted on 21/09/2017 at 07:46
Published on Care Opinion at 14:09


Dear Anne

Thank you so much for taking the time to provide feedback regarding the Care that Keith from the Adult speech and Language Service has provided to Geoff.

Your statement:

'He (Keith) put himself completely in the frame for making sure Geoff's needs were met'

is a wonderful testament to the care and attention that you describe Keith has provided for Geoff, and I can appreciate that this care in turn provides support to you. I will ensure that Keith sees your comments.

You also refer to the Dedication provided by the Eyegaze computer technical team and we will ensure that your comments are passed on to those team members.

I would very much like to contact you in my role as Patient Experience Lead.

If you feel able to contact me Julie.miller5@nhs.net I would be delighted to hear from you.

With Kind regards to both you Anne and Geoff

Julie

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