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"As a carer I was invisible"

About: Humber Teaching NHS Foundation Trust / Crisis resolution

(as a carer),

I was caring for someone with bi polar disorder and borderline personalities disorder,

I was the main carer, with lasting power of attorney.

I visited the local mental health team and spoke with one of his workers and explained how the rapid cycling was affecting the person I was caring for. I asked them to visit and assess him. He refused,

Later that day, the situation got worse, I called the Rapid Response Team a number of times and they refused to attend.

This resulted in a service user taking his own life.

The Humber Mental Health Trust failed this person and me as a carer, and the whole family.

I was told initially that an investigation would take place, and I would be involved, I was then told they 'assumed' I was next of kin, but now, I wouldn't be included in the investigation.

The director of operations 'assumed' and made decisions without looking at the Lorenzo system, and so did the Rapid Response Team.

I believe this fatality could have been avoided if the professionals would have visited. Yet it seemed to me they ignored the risk and relapse plan, and care plan.

As a carer I was invisible and I remain invisible. I feel like I do not Matter.

I have learned the services often don't come in life, do not come in death, and do not come after death.

They will refuse now to comment, and justify this by stating they are operating within the boundaries of the law, which is correct, however, I believe they failed to act within the law when it mattered most.

They will conclude that lessons will be learned, however, I suspect the learning will not be put into practice.

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Responses

Response from Humber Teaching NHS Foundation Trust 6 years ago
Submitted on 04/10/2017 at 12:11
Published on Care Opinion at 12:23


Firstly, we would like to express our sadness at your loss and to convey our deepest sympathies at what must be an extremely difficult time.

We would also like to say we are very concerned by your criticisms of our services.

Although our legal duty to protect patient confidentiality prevents us from responding in detail in public, what we can say is that we expect all of our services – including Rapid Response - to offer a compassionate, caring and supportive response to our patients and carers at all times.

Rapid Response is designed to offer the least restrictive approach to supporting our patients in their recovery. Not all of the calls it receives require a face-to-face intervention, with many calls resolved through a single conversation. Advice may be provided and other means of support suggested.

To support training, all calls received by and made from the service are recorded, enabling individual responses from the team to be reviewed if the time and date is known.

Any concerns raised about our services are investigated seriously, rigorously and in the strictest confidence. Any issues are dealt with immediately.

To enable the Trust to examine and respond to your criticisms with equal urgency, we would be grateful if you could contact our Patient Advice and Liaison and Complaints Service by calling 01482 303930 or emailing hnf-tr.complaints@nhs.net at your earliest convenience.

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful

Update posted by Carer in Beverley (a carer)

In my view this is not a true or accurate, transparent, respectful, empathic, or genuine response.

I have repeatedly contacted the Trust to meet with the chief executive, and an elected governor, to raise my concerns and all my attempts have failed.

All I have received to my requests for this contact for the past 70 days since the day of the mortality were acknowledgement emails stating my requests had been passed on.

I have not received details of what is known as a ‘mortality review’, because it had not been ‘signed off’ by the board. I am still waiting. I have not been given terms of reference, timescales or notice that anyone investigating what I honestly and truly believe is this Serious Breach Of Care, is Truly Independent

Is this fair and proper? Or a true reflection that carers do not matter? The Francis Report is insignificant? And that mentally ill people die? Should we just “get over it

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