I tried many times to contact Crisis Team out of hours via text as I have ASD and tourette's syndrome and struggle to use the phone. A member of the team phoned me but did not introduce himself, his role or that he was calling from the crisis team. This is not only basic phone ettiquette but really important information for service users.
As he could not see I was having tics he tried to finish my sentences for me, which was very difficult so I hung up.
Over the next week I contacted crisis team twice by text to no response and eventually called back. I was told I should not be contacting during working hours and that the reason my texts hadn't been responded to was 'bad phone signal'. I was also given this excuse in 2012. If it has been a problem for this long why has it not been rectified? Additionally I just don't believe where they are is a mobile blackspot!
Unfortunately I then ended up in QMC due to my crisis situation.
I think the crisis team need better methods of communicating with those who cannot express themselves on the phone. I think they need to learn more about ASD and how ASD and MH interact. For instance it is common for us to take longer to answer questions because of processing, lack of eye contact isn't a sign of poor MH, that physical touch is generally not welcome, open ended questions are often difficult and that the patterns and reasons behind intrusive thoughts might be entirely different from someone without ASD.
I'm still seeing crisis team and I hope it gets better but so far I feel like I don't fit their box and they are unable to adapt to me. I also don't fit into the intellectual disabilities box and therefore I feel very lost in a crisis and that it should not take so much effort over many days to be seen. It was only due to other professionals that I even got a response a most of my contact had not even been logged on the system.
"Nottingham City Crisis Team"
About: Adult Mental Health Community Adult Mental Health Community Nottingham NG3 6AA
Posted by AnIndividual (as ),
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Update posted by AnIndividual (a service user) 7 years ago
See more responses from Ruth Gadd