"neuro surgery waiting list"

ok so my husband had to have an mri scan as urgent which was on boxing day at uhcw. attended the gp a few days later due to severe pain doctor advised that mri scan was back and that he wanted the consultant to see my husband asap. my husband attended as requested to see the consultant at george elliot in January and after nearly two years of trying everything else first was agreed that there was still issues and surgery was needed. We were told at that point about 8 _12 weeks wait.

Attended pre op at uhcw towards the end of January and after this a date was sent out for early March so we attended ward 43 on this date at 7 am, husband in agony as no meds but still was hopeful that it would soon be over for him. Anaesthetist came round no room to see us so took us in to nurses room that was full of handbags and coats but still not the end of the world.

There were no beds for people so patients sitting in day room in there gowns and going straight to theatre from there not dignified. My husband saw the doctor and was marker penned up and advised by staff that surgery between 12 and 1. 12. 45. My husband is called out by a heathcare assistant telling him surgery cancelled as a lady that was there was more urgent. So why if the lady turned up 1 hour after us weren't we told this then to save us sitting there all day. By the way was told that my husbands was urgent he was contacted in February  to see if my husband could go in then,  my husband agreed but due to meds he was on he couldn't have it done. Anyway my husband had been nil by mouth all night and most of the day was in agony as couldn't take meds. We had both booked time off work and we were stranded at the hospital. My husband passed out whilst we were waiting for someone to come out of work to take us home. I called secretary gave me an appointment for a week later so all plans put back in place but I couldn't book any more holiday from work. Three days before this new date phone call was received from the doctor saying that the secretary had basically not given us a proper appointment and its the chance we take if we turn up whether surgery is done.

So to cut a huge story short my husband is constantly collapsing, his temp is not regulating, in agony is falling over all the time. cant sit, struggling to walk and has no quality of life he is 43 years old. It is the most horrible thing to see and watch him going through his teenage children are frightened to be around him  in case he collapses. So we either just wait on this date for a 20% chance is what was said whether its done or the doctor said maybe inApril in rugby or possibly May at coventry.

Dont actually no where to turn anymore or what to do. contacted the clinical commissioning group and spoke to them was also advised that if op is cancelled especially after waiting 6 hours they have to offer you another appointment within a 28 day time frame these proposed dates are not in this time frame. I'm disgusted at the care not received. It feels like no body cares they are messing with peoples lives. I will be seeking legal advise because I can not see my husband suffer anymore.