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"Mental Health Line"

About: Sussex Partnership NHS Foundation Trust

(as the patient),

This line is run by my MH trust, supposedly for people in crisis or needing support out of hours.

Firstly, the line is often busy. I can try several times a day and not get through.

When I do get to speak to someone this can help. Unfortunately I have had a lot of dismissal, invalidation, and condescension.

If I say that MH services have been less than helpful, they are defended. I have felt not given the space to talk about what I need to, but talked at, and asked irrelevant questions eg what did I do today.

I try to open up and speak to these people. Sometimes I can’t speak and just hang up. It’s not intended to be a nuisance call. Sometimes I am distressed, and although I am never abusive (I don’t personally insult them or swear etc) I might be ranty, not very coherent, angry or in tears. This is human. I feel that this is met with discipline, like being told to calm down or even hung up on. I feel I’m either not in a state to speak at all, or sound fine, perfectly calm and composed.

Some time ago, I complained about a staff member. I had been so distressed I was unable to speak. This sometimes happens. I don’t call intending to do this - I can't physically get the words out. Given a little time and no pressure, I will do so. The Samaritans seem to understand this. A mental health helpline seemingly cannot. This staff member said in a very aggressive and impatient tone, Can you speak please followed by If you’re not going to speak, don’t bother ringing. I didn’t bother continuing the call. I eventually got a letter saying the staff member denied saying this and I felt implying I was lying. Why I would make this up I do not know. To be called a liar is incredibly hurtful.

I was in such a state a few days ago that I got home and sat on the floor by the door, unable to even put my shopping away. I called and was told off for shouting - I wasn’t. Later I tried again and was unable to speak at all, and the staff member, instead of encouragement or even checking I was there, just hung up. I called back later and asked if they had hung up and they said yes, they had heard shouting so hung up. I did not shout.

I called recently and was distressed. I called again to try to talk this through when a little calmer and the person snapped very aggressively that they were going to report me. I hung up in absolute shock.. I became paranoid they would call the police and left my home in the middle of the night in November to sit on the street, crying. I had to call the Samaritans.

I feel my difficulties have been minimised. I have stated I felt unsafe and had very intrusive thoughts of suicide and staff have said that I wasn’t going to do it and didn't really want to die.

Staff behaviour has made me find it very difficult to call this line as I feel I will be told off, hung up on, punished for being distressed. This is really hurtful when I am actually a human in distress and just need some patience.

I think they think that I am bothering them and being deliberately difficult. I am not a nuisance caller. I am desperate, suicidal, unwell and just trying to get some support.

I am left feeling that they have blacklisted me, and that I cannot call them. I feel I have no-one on my side or to turn to when I am feeling very distressed out of hours. This makes me feel even more desperate and suicidal.

 

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Responses

Response from Sussex Partnership NHS Foundation Trust 7 years ago
Submitted on 05/01/2017 at 10:54
Published on Care Opinion at 16:23


Dear C1234

Thank you for giving feedback about our service.

I would like to apologise that you have not had a good experience of calling the Sussex Mental Healthline and that we have not been able to meet your needs. I would like to further apologise that this has added to your distress. At times callers do need some time and encouragement or time to be able to talk or space to ventilate emotions. This does appear to be something you have felt unable to do whilst ringing the line.

I would like to try and reassure you that we do not blacklist callers or ever assume that any of our callers are bothering us or being deliberately difficult. I would also hope that you would feel able to call us for support again in future. I understand that you may find this difficult as you have lost trust in our service. If you would like to at any time in the future meet with me alongside PALS or your care team we could draft a support plan for over the telephone so that the team can aim to support you in the most appropriate way to meet your needs.

Please contact the PALS team on 0300 304 2198 if this is something you would like to consider in future.

Monique Devlin, Team Leader

Update posted by C1234 (the patient)

Hello, thanks for the reply. I would like to meet with you as suggested. Please feel free to call or e-mail me.

Response from Rachael Kenny, Head of Involvement, Sussex Partnership NHS Foundation Trust 6 years ago
Rachael Kenny
Head of Involvement,
Sussex Partnership NHS Foundation Trust
Submitted on 25/09/2017 at 09:34
Published on Care Opinion at 10:20


Hello

I am afraid we have no way of contacting you apart form through this site - your email is not shared to protect your confidentiality.

If you would like to contact me through my email directly I can put you in touch with the team

kind regards

Rachael Kenny

Head of Involvement

Sussex Partnership

Rachael.kenny@sussexpartnership.nhs.uk

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