Since the 15th January 2006 I have suffered with dizziness, the room literally spins. The spins vary in strength and can happen at any time sitting or standing or walking but are at their most violent when laying down on my right side. I have tinnitus and loss of hearing and constantly feel light headed as is suffering from the flu. When I am tired the symptoms are much more prevalent. No medicines that I have been prescribed have alleviated the symptoms.
I was able to see a ENT Consultant eventually after a long wait for an outpatient appointment at King George who sent me for various tests which included a MRI Scan in Oct 2006. That Scan showed that I had a cyst on the brain left cerebellopontine angle the size is 25mm by 12mm. Unfortunately on each of the four appointments that I have had subsequently since having the MRI scan, I have never actually seen any of the Consultants being able to load the images on the computerised system when my name is entered it did not show any results. Today after another outpatient appointment I have been discharged by the Neurologist as they do not think that the cyst is the cause of my symptoms.My question is did they ever look at the scan images to make this diagnosis.
I have also been referred to Queens at Romford for a hearing aid, only today after a wait of nearly three months have I been informed that the waiting list is 18months unless you are fortunate to reach your eighties. I have also been told to do cawthorne cooksey exercises, these exercises by rightly should be carried out with the help of a physio again no offer to book a physio for me. Neither is there any guarantee that the exercises will treat my symptoms they may even exacerbate the symptoms. I am having to make my own physio arrangements luckily we do have a private health care plan that will pay for part of the treatment.
After today I feel that I have been totally let down by the NHS, I may look perfectly healthy on the outside but these symptoms are far from normal and preferably I would like to get my life back on track in the very near future. So far the impression on a diagnosis i am getting from the NHS is that "Tough I will just have to live with it!"
"Feeling let down by the NHS"
About: King George Hospital / Ear, Nose and Throat King George Hospital Ear, Nose and Throat IG3 8YB
Posted by Laney (as ),