"The saga continues unabated"

About: University Hospital Wishaw University Hospital Wishaw Wishaw ML2 0DP

Posted by Madge51 (as the patient), 8 years ago

Prctogram Dec 2014 YES that's right 2014
Uro-dynamic Sept 2015
Bladder & stomach ultra-sound Sept 2015
SeCat Scan Oct 2015
Consultant Apptmt - May 2016
Pre-Op Assessment - June 2016
Clock stopped - Anesthetist needs a face to face!
Just look at these timelines and the fact that decisions are being made based on out-of-date information.It feels like those entrusted with my health care don't realise that Systemic Sclerosis is a PROGRESSIVE condition. I really hope that the clock does NOT stop but gets a bloomin shimmy on because I'm furious at the delay in getting treatment while my quality of life slips further and further downward.
When a surgeon tells you that other people have been 'in progress' a lot longer it is irrelevant and frankly unhelpful. I think it is shameful that people are waiting years for treatment they clearly need. My personal worry is that when the laparoscopic procedure finally goes ahead, it will be too late and be abandoned as inappropriate.

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Responses

Susan Friel

Director of Nursing, Acute Services,

NHS Lanarkshire

Submitted on 28/06/2016 at 11:00

Published on Care Opinion at 11:07

Dear Madge 51,
I’m sorry that we have not met your expectations and your journey through the healthcare system continues to be challenging; your frustration is palpable.
I agree with your comment about the reference to “other” people’s condition when it is you that we should be focused on; I will share this feedback to all staff groups for reflection.
As you know from previous contact, both myself and the Chief of Medicine would be happy to meet with you to discuss and address your concerns. You have my personal contact details from previous correspondence, or you could contact the Patient Affairs Department to discuss further options, or to arrange a meeting on Tel No: 01355 585325.
Kind regards
Susan

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Update posted by Madge51 (the patient) 8 years ago

This issue lies with Wishaw General. The system seems to have defaulted to Hairmyres in error. I have notified the admin & hopefully it'll be corrected soon. Wishaw are picking up this latest issue.

Update posted by Madge51 (the patient) 8 years ago

It is noted that 'Activity - Who has been told', two people in Patient Services have been told. Assuming that one was Susan Friel, whose response can be seen. I assume the other was from patient affairs at Wishaw General
Despite having seen the Anesthetist in early July, 10 days earlier than originally appointed, I still don't know whether the 'clock' was restarted when I first complained, if at all.
I would have expected to see a response from Wishaw General on here so that other patients might gain reassurance that their complaint is being taken seriously.

Gina Alexander

Director, Care Opinion Scotland,

Care Opinion

I lead our wonderful team in Scotland

Submitted on 29/07/2016 at 10:53

Published on Care Opinion at 10:55

Dear Madge51
I am sorry, I think we are to blame for a bit of confusion here which has resulted in the wrong staff being alerted to your story at NHS Lanarkshire.
Hairmyres Hospital was mentioned initially, as you say that was an error. We reassigned to Wishaw General Hospital but think we may not have alerted the relevant staff there when we did so.
I will make sure that happens now. Apologies again.
Best
Gina

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Gillian McAuley

Chief of Nursing Services, University Hospital Wishaw,

NHS Lanarkshire

Submitted on 29/07/2016 at 12:04

Published on Care Opinion at 12:20

Dear Madge51,
I am really sorry this message didn't go to the correct team and for the further distressed this has caused. The post is now with the Wishaw team and I would be very grateful if you could contact our patient affairs team on 01698 366558, to enable us to ascertain all the details and deal with your concerns.
Kind Regards,
Gillian

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Update posted by Madge51 (the patient) 8 years ago

Hi Gillian, All the relevant information is on the first post.

Gillian McAuley

Chief of Nursing Services, University Hospital Wishaw,

NHS Lanarkshire

Submitted on 04/08/2016 at 10:59

Published on Care Opinion at 14:38

Dear Madge 51,
Yvonne Ross our patient affairs manager now has all your contact details and will call you, I am keen to help resolve your issues. Yvonne will be in touch today.
Kind Regards,
Gillian

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