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"Continuing health care"

About: Exmouth Hospital NHS Northern, Eastern and Western Devon CCG

(as a carer),

My husband has been poorly for 6 years he has COPD and spinal anteriovenous malformation, for which he had an operation in 2014. Since then he is unable to walk and is doubly incontinent. I have looked after him until June this year when I could no longer manage.

I applied for CNC which eventually received but I found the process very stressful, lack of communication, unable to reach the manager.

Offered a place in Exeter 15 miles away, which for me was difficult as I have a mobility problem. The nursing homes seem to be reluctant to deal with this over the internet and it seems very impersonal and it took a very long time.

I felt I was living in Limbo for many weeks.

Exmouth hospital helped me through this and have been very caring towards me and my husband. I would not like to go through this again and I think your methods should be revised.

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Response from Jayne Kruszewski, Patient Experience Manager, Northern Devon Healthcare NHS Trust 6 years ago
Jayne Kruszewski
Patient Experience Manager,
Northern Devon Healthcare NHS Trust
Submitted on 21/08/2015 at 07:39
Published on Care Opinion at 09:39

Dear carer

Thank you for taking the time to post your feedback on the website. I was sorry to read your comments, and fully acknowledge how stressful it can be applying and securing Continuing Healtcare funding - the process is currently under review with the aim of improving communication to ensure carers are kept fully informed throughout the process - I was however pleased to note staff at Exmouth hospital supported you through the process, and I have shared your comments with the CHC team where they will be gratefully received.

many thanks


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Response from Peter Brain, Volunteer, Healthwatch Devon 6 years ago
Peter Brain
Healthwatch Devon
Submitted on 24/08/2015 at 16:41
Published on Care Opinion at 17:02

Dear 'truly'

The comments and responses on the web-site of Patient Opinion are shared with us at Healthwatch.

Thank you for responding through Patient Opinion to what is evidently a stressful sisutation. At Healthwatch we are building a picture of the provision of services in Devon and these comments should help the NHS and other providers develop and improve their services.

If you wish to discuss any health or social care issues with us in confidence, including seeking advice or information about services, please call 0800 520 0640, or email or go on-line to

Yours sincerely

Peter Brain

Healthwatch Devon is the consumer champion for Health and Social Care in Devon.

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